Posts Tagged ‘babesia’

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The Trouble with Triggers

Monday, March 10, 2014

These past few weeks, I’ve been feeling worse. For a while, I was confused. I thought things were getting better. I tried to trigger the Lyme infection using a series of vaccinations. Nothing happened at first. So I assumed that the vaccinations did not have a triggering effect and forgot about them.

About two and a half weeks after the first vaccination, I started having heart problems. It seemed random. Then last week, when I was at the Lyme Support Group, giving an update on my life and health, I mentioned that I’d had the vaccinations. Then I talked about my disappointment that they were ineffective. Later on I talked about how I was feeling worse. Somehow, saying it aloud made something click inside my head, not right away, but in the car on the way home. Over the weekend, I was talking to a friend who is an immunobiologist (not a medical doctor) and she mentioned that it would probably take about two weeks for the immune system to mount a systemic response to a dermal vaccine (which is what I got). The immediate, visible response on my skin didn’t confer systemic immunity, which took more time.

Now it all makes sense. I got the third and last dose on Thursday of the rabies vaccine. An immediate response appeared on my arm. Within a few hours, I felt more Lyme symptoms than in a while. It turned out to be an effective trigger. When I asked her about this, she suggested that the third injection was able to stimulate a fast systemic response because my body had already “learned” how to respond to the infective agent.

All this past week, I’ve been thinking about triggers, about my last musings about which infection(s) might be at the root of my heart problems, how I know when to stop coiling for an infection, and why it is so hard for me to consistently exercise (or do anything consistently besides using the coil machine).

The Trouble with Triggers

The problem with “curing” Lyme is that it is often a functional cure, more like putting it into remission than getting rid of the infection. In that way it is similar to many other illnesses, including, for example, the virus that causes chicken pox. For most people who are old enough not to have been vaccinated, once they are “over” the initial illness, they never experience the symptoms again. But for the unfortunate few, a bout of high physical or emotional stress can trigger shingles (or even worse, a second bout of chicken pox). The virus lives in the nervous tissue in a dormant form. It is rare under “normal” conditions that the virus reactivates.

It is less rare for a dormant Lyme infection to reactivate. Several people I’ve met have either ongoing symptoms, indicating continued infection, or have had full relapses, though not necessarily with identical symptoms to the first round of Lyme Disease, even if that first round was advanced, chronic Lyme Disease.

My way of trying to prevent a future outbreak of the Lyme infection once I get to the end of coiling is to try to trigger it over and over until there is little or no dormant bacteria left. I’ve been working on this for a while. The first new stress I generated was a reduction in nutritional and herbal supplements that made my immune system stronger than it is on its own. Then I added back in foods that trigger sensitivities. This is an ongoing stressor that I do periodically. As long as I keep coiling for and killing the Lyme infection, the sensitivities decrease. The last food sensitivity I still have to conquer is eggs.

Most recently, I’ve been trying a different trigger: vaccinations. I’m not getting gratuitous vaccinations, but ones appropriate to anticipated travel. These are succeeding in triggering the infection. I feel temporarily worse. In fact, I feel worse for longer than I did even on eggs.

The trouble with triggers is that it is difficult to control them. I don’t know in advance which infection will get triggered: Lyme? Bartonella? Babesia? some other infection I’m not yet coiling for? Eggs trigger all three known infections. The recent vaccinations seem to trigger Lyme mostly and possibly Bartonella. I’m not sure if my Bartonella symptoms are from not coiling my whole body while I coil for Babesia or if they indicate a vaccine initiated flare.

The next problem with triggers is that I don’t know how long the flare will last. For example, with the supplement cessation, the triggered symptoms lasted a few weeks, but diminished with each Lyme and Bartonella coiling session. With eggs, the Babesia infection woke up and hasn’t quite gone away yet, but the Lyme flare lasts only about 48 hours, assuming I coil within 24 hours of exposure. With the vaccinations, the triggered symptoms have been sustained over several weeks, diminishing after each Lyme coiling session, then coming back again within 24-48 hours. Not my favorite trigger, but possibly the most effective one.

Related to this problem is that I don’t know how long the trigger will take to generate a reaction. I know when I introduce it into my body, but I don’t know when the symptoms will start to appear. That’s why I got so confused about the symptoms triggered by the vaccinations. Unlike the symptoms triggered by eggs which appear about 1-2 hours after ingestion, or those triggered by wheat which appear in as little as 40 minutes or as long as several hours later, symptoms triggered by vaccinations, at least this time, initially took more than 2 weeks. After the third vaccination for the same disease, it took only a few hours. When I take my last vaccination for a different set of illnesses, I don’t know how long it will take for the symptoms to be triggered.

Another problem with triggers is that it is impossible to predict which symptoms will flare…and that I have to suffer through those symptoms! I didn’t know that the heart problems might be related to the vaccination. It seemed so mysterious and discouraging when they appeared. I was pretty upset by the random timing and the fact that cardiac symptoms are so debilitating. Unlike wheat symptoms, which primarily cause pain in my ribs and joints, cardiac symptoms prevent me from completing anything more than minimal daily functions. After most of the heart symptoms mostly resolved, I’ve been left with joint pain in my hands and spine and shoulders, as well as knee pain and fatigue as the primary Lyme symptoms. Other symptoms have included a return of floaters in my vision and some digestive distress. Of course, a few days after the last vaccination dose, I’m starting to have cardiac symptoms again.

The final and worst trouble with triggers is that they make me feel like I’m not getting better. I believe that I have gotten a lot better over the past three years, and even more drastically and obviously better since the summer. I’ve had whole weeks of being well and living my life the way I’d like it to be when I no longer need to coil (well except for three hours a day coiling during these good weeks!). When I trigger the Lyme and other infections, I feel worse. I feel like I haven’t made progress. I feel like this illness will never be over. However, thus far, except for the vaccinations, the triggers have had less and less of an effect as I use them and coil successively. The other exception is wheat. Wheat is my way of knowing how active the Lyme infection is. When it is active, I get rib pain within an hour. When it is mostly dormant, the rib pain might take several hours to appear or be very faint. So these triggers serve their purpose and seem to help me rout the infections, going a layer deeper each time I use a trigger.

There is one more idea I’ve been pondering. It seems that if all I wanted was to feel better, as in reduced symptoms, I could have had that this autumn. I could have stayed on all the supplements indefinitely, maintained all the food restrictions, avoid vaccines, be careful about not getting too stressed or eating food that might in any way be bacterially contaminated. It would have been a trade off, feel okay but have huge limits on my daily life. The philosophical conclusion I’ve come to is that in order to feel good sooner, I’d have to content myself with a permanent, mostly dormant, infection load, and I’d have to limit my life in ways that I find unacceptable. It is nearly impossible to avoid all triggers forever, so I’d keep the coil machine around for when I run into one unexpectedly. Instead, I’m choosing to tackle them head on and to reduce, hopefully eventually to eliminate, their power over me. In the end, I’ll be stronger and more fully able to live the life I want to lead.

Cardiomyopathy Revisited

In the last blog post, I talked myself into thinking that Bartonella is the root cause of my various cardiac symptoms, which include a tricuspid valve prolapse, chest pain, shortness of breath, fatigue and sometimes low blood pressure. In the interim, I’ve begun to think that that simplifies the picture too much.

I spend a lot of time trying to understand which infection causes which symptom. That makes it way easier to decide which infection to target at any given point in time. The reality is that the chronic tick-borne infections cause a variety of overlapping symptoms. Fatigue is a constant companion when I have a flare of any kind. Neuropathy in the form of pain, tingling and other strange sensations comes around with both Bartonella and Lyme flares. And that is just two of the examples, the list could be quite long.

Beyond the overlapping symptoms, there are the interacting problems. This is what I’ve been thinking about my heart. It is possible that the Bartonella infection contributes by messing with my vagus nerve and causing it to stimulate inappropriately, as it does with my intestines and less frequently these days, causing extreme hand pain. It is also possible that the reduction in blood pressure and other blood disturbances caused by Babesia exacerbate any minor cardiac symptoms that might have been less noticeable when my blood pressure was normal and able to transport and exchange oxygen, carbon dioxide and various dissolved substances in its normal way. That might explain why the cardiac symptoms diminish or even seem to temporarily vanish when the active Babesia infection is killed off. Finally, the Lyme infection may have tampered with the actual heart muscle in a way that I’ve heard about anecdotally from other patients, but is not as clearly causal as the well known AV heart block that appears in Lyme literature. Even when I am not experiencing air hunger or low blood pressure that I associate with Babesia, I feel heart pain and can hear the tricuspid valve prolapse with a stethoscope during Lyme flares.

Each contributes its component symptoms, but back when all three infections were raging, I was fully incapacitated with cardiac symptoms that seemed like a product (multiplication) of their parts, rather than the sum of their parts. These interactions might explain why when I fainted in 1995, when I didn’t have Lyme or Babesia, I recovered relatively quickly, but in 2001, when I had all three infections, I ended up discovering the tricuspid valve prolapse and have had ongoing problems since that time that coincided perfectly with other symptoms of the infections.

Endpoints

In the last post, I mentioned that I planned to do at least 14 full body coiling sessions on Babesia before I stopped. The symptoms have been mostly gone. The night sweats have gotten less frequent and sometimes don’t occur for a few nights. But I missed a few days, the night sweats came back, and now I’ve been coiling the full body Babesia protocol daily. I prefer to keep going until the last symptom has been gone for at least 2-3 weeks.

This time it is a little bit more complicated. I’m not totally sure that the night sweats are from Babesia. Certainly they are affected by whether or not I coil for Babesia, which could be that I haven’t reached an endpoint in terms of killing the active infection, or that as the Babesia die off, something else is presenting itself. The only way to know would be to go back to trying out multiple other frequencies until I find one that works, or to keep coiling away at Babesia until the night sweats disappear.

I won’t be implementing either plan in the short term. I’m taking a two week coiling break starting Thursday, when I go to visit my sister’s family. Then when I get back, I’ll figure out what I need to do for Babesia.

Looking back, however, I stopped coiling for Babesia prematurely in December 2012. The night sweats, which were my last Babesia symptom, got worse for a week, then they disappeared. I didn’t deal with Babesia symptoms again until this year. It is possible that my body could defeat Babesia while I’m taking my coiling break. Only time will tell.

New Habits

I am so excited when I feel well. I have a list of things I’d like to spend my time doing, including doing exercise on a daily basis (even if it is just walking around the neighborhood and occasionally doing something more rigorous), finishing my book about how to use the coil machine, cooking and baking foods I like, going outdoors to the local beach. Lots of things I’d like to do. I can manage to do them sometimes. But other than coiling, I’ve had difficulty developing new habits.

Sometimes I think this is a moral or psychological failure on my part. If I tried harder, prioritized better, or somehow changed the way I organize my time, I could be more active and do the things I enjoy doing. Today, though, as I was writing about triggers, I could recognize the ups and downs I’ve been experiencing. When I have no pain or fatigue for a day, I do a lot. It’s incredible. When I have pain, fatigue, cardiac symptoms, recurrent bowel problems (as in recurring all day long), I slow down. I can’t concentrate. I have a hard time moving around. I have a hard time motivating myself. When I do too much on a day like that, I find the next day to be totally wasted, with a strong need for rest.

Then there are the in-between days, when I’m mostly okay, and only somewhat distracted by the myriad of symptoms. I can do something, maybe two things, on a day like that. That’s when priorities become a big deal. Which is the one activity I’ll do today? If I have any energy or concentration left after that, what is the one other thing I should do? It’s rough. So on those days, I might have to go food shopping, and that’s just the way it is. Or I might decide to blog or clean up the kitchen. Or I might socialize with friends. I just can’t do all I want to when I’m having a hard time physically.

Thus I remain hopeful. As I have more good health days again, when the triggers lose their potency because more of the infection load has been eliminated, I can go back to developing the life habits that make every day a good day all around.

Disclaimer

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Indirect Connections

Wednesday, February 26, 2014

For the past week, I’ve been having heart problems. Unfortunately, there is nothing to do for them. I think they are the same problems I’ve had in the past: tricuspid valve prolapse with some regurgitation. I recognize the sound when I listen to my heartbeat.

As the days pass without this particular symptom letting up, I’ve been thinking about my history of heart troubles. I found a connection in them, one that I don’t think would be obvious to anyone unless they practiced Traditional Chinese Medicine. It isn’t even an obvious connection to me. When my heart has troubles, I have simultaneous intestinal problems. The converse is not necessarily true.

Fainting Spells

Back when I was 20 years old (1995), I was on vacation in France after doing a study abroad program then working on an organic farm. The work was hard, there wasn’t enough food, but I still learned a lot from the experience. While I was on vacation, I fainted, in Lourdes, no less, where people go to miraculously get cured from incurable illnesses.

Just before I fainted, I felt something in my head and in my bowels. I told my parents I needed to use a toilet. When I woke up from the white out, in which I actually lost consciousness for a short time, I was sitting on the john in a public restroom. I had severe diarrhea. I had the now familiar chest pain and heart palpitations. I felt weak. So while my father visited the grotto, my mother and I sat in a cafe and had tea until I felt well enough to walk around again. I was exhausted. I needed a lot of rest for the next two days. I didn’t seek any medical treatment. I didn’t listen to my heart, so I don’t know if I had evidence of the tricuspid valve prolapse back then. In any case, I was fine again in a few days.

Fast forward to 2001, when I was 26 years old. One Saturday in October, I was standing in the customer service line at a grocery store in Hamden, CT, when I started to feel funny. I had a very sudden and very urgent need to defecate. I put my purse on the customer service desk (that’s how much my brain shut down) and headed for the bathroom. As I walked through the produce area, I whited out, fainted, collapsed to the ground, and woke up rather quickly. As soon as I got up and took a few steps, I whited out, fainted and collapsed again. After I collapsed for the third time, the manager told me to stay down. A crowd had formed around me. I told him to get me to the bathroom or I would  get up again and walk there myself. So he helped me to the ladies’ room and I let out an explosion of diarrhea. I was so weak, I had to sit on the floor for several minutes. Before I mustered the strength to stand up and wash my hands, two EMTs burst through the door. (I insisted on washing my hands when they tried to get me onto a gurney.)

When I was in the ambulance, the EMT told me my blood pressure was really low. The systolic pressure was under 50mmHg. He placed my head lower than the rest of my body and desperately fought with my veins to insert a IV saline drip. I passed out again.

I woke up on the hospital some time later. Later enough that tests had been run, my clothes replaced with a hospital gown, and the room darkened. The doctor told me I had an extra beat in my heart. He suggested that I go to see my internist or a cardiologist on Monday to find out what was causing it. He let me listen to the three beat rhythm. He told me to come back if I had any chest pain over the weekend.

It was at that point that I learned about my tricuspid valve prolapse.

Collapsing without Fainting

In 2007, right before my legs stopped working, I had a very serious bout of diarrhea. First I had a short bout in China, while on vacation. That cleared up. About a week later, the diarrhea started again, and it didn’t let up for months.

Shortly after the diarrhea started, I went to see a doctor because I collapsed at work. I had no white out or fainting, but my legs gave way. While I was waiting for the doctor at the clinic in the building where I worked, I had to lie down on the examining table. I was too weak and tired to sit up. She listened to my heart. Apparently the third beat was so prominent that she wanted to get a second opinion about what it might be. She called in another doctor. I felt like I was in a Saturday Night Live skit. Neither one of them knew what to do with it as they took turns listening to it. They had me see a cardiologist. I told them about the tricuspid valve prolapse, but they said that in my clinic record from the last few appointments there was no note of a third beat in my heart rhythm. It was at that point that I made a mental note that the problem was inconsistent. I didn’t always have a prolapse or at least not a severe one. But when it was bad, it was really bad.

Infection Connection

I spin my wheels sometimes, trying to figure out which of the tick-borne infections cause which of my symptoms, especially this two-fer combo of intestinal problems and heart troubles.

The first fainting spell happened in 1995, after my first tick bite at age 2 (1977), which is when I think I contracted Bartonella. This would suggest that Bartonella is the culprit, and is usually the conclusion that I return to after thinking it through. The second fainting spell was in 2001, about 6 months after my second tick bite, which is when I think I contracted Babesia and Lyme. It is possible that the stresses that these other two infections added to my body caused a Bartonella flare. The third collapse, which happened with a combination of heart and bowel troubles was in 2007, shortly after a huge stress on my body. At that point, I think all three infections went berserk (and triggered the cascade that left me unable to walk and suffering a painful, mysterious illness).

The confusing part is that when my treatments got rid of Babesia symptoms, the heart problems would go away until the other Babesia symptoms came back. For a long time, I’ve associated cardiac symptoms with Babesia. One possibility is that Babesia causes additional cardiac stress or symptoms, which makes the existing Bartonella-induced problem more noticeable. Another possibility is that the low blood pressure, which is definitely Babesia induced, stresses my heart and makes the tricuspid valve prolapse more pronounced.

On the other hand, I’ve read that Lyme Disease can cause all sorts of heart problems, some of which are very specific, like a heart block on an EKG, and which I haven’t suffered from. It can also cause other symptoms which are usually coincident to my altered heartbeat: chest pain, shortness of breath, fatigue. So I don’t know of those symptoms are from both illnesses or directly resulting from the tricuspid valve prolapse (or the resulting regurgitation).

I know for sure that Bartonella has been the culprit in a lot of my intestinal symptoms. I can see it when I review my medical history as well as when I’ve done Bartonella-specific treatments. The question is whether it is behind my heart troubles. The closest answer I come to is that my vagus nerve seems to be strongly affected by the Bartonella infection, and that this nerve can get overstimulated easily in me and cause seemingly unrelated problems. The most obvious instance of this phenomenon is during the beginning of my menstrual cycle, which I’ve written about before. The tricuspid valve prolapse seems like a possible manifestation of irritation of my vagus nerve. Only, I’ve not been able to find a medical source that suggests any connection between the two.

I don’t think my tricuspid valve prolapse is structural because the problems caused by my tricuspid valve come and go. Instead, I think there is a functional problem in part of the system that regulates my heart contractions that causes intermittent problems. My best guess, based on everything else I’ve learned about the infections and about my body is that my vagus nerve is triggering the tricuspid valve prolapse, either directly, or indirectly, by its interactions with the sympathetic nerves that also control my heart.

I suspect that when my body has other stressors, like low blood pressure, dehydration, diarrhea, or other symptoms that are caused by the other infections, the vagus nerve gets overstimulated. That’s why it sometimes seems like the proximate cause of my heart troubles lies with something other than the Bartonella infection. Furthermore, the Bartonella infection has consistently wrought havoc in a variety of ways in my intestines, giving me all the classic symptoms of Irritable Bowel Syndrome. When these act up, like they have in the past week and a half, starting with the hemorrhoid from hell, and culminating today in an ugly bout of diarrhea, the intestinal stress may trigger more vagus nerve symptoms, including my cardiac symptoms.

Wow. This isn’t the conclusion I expected to come to when I started writing. But it seems like it might help me figure out what to change about my coiling routine.

A Scatological Aside

While I was learning about intestines, I came across the Bristol Stool Scale. I found it incredibly useful. For example, sometimes I’ve said I had diarrhea when it wasn’t purely liquid, but rather an unformed goo with some small solids interspersed. The liquid-only form is a 7 on the BS Scale, and what I had was a 6 on the BS Scale, both of which are considered diarrhea. At the other end of the spectrum, when I talk about constipation, I’m still defecating daily (usually), but the stool is small and painful to pass. These times, my stool looks like a 1 or maybe a 2 on the BS scale, which are considered constipation. The worst is when I vacillate between a 1 and a 6 on a single day, like today.

The Bristol Stool Scale is a useful educational tool, especially for people with chronic bowel troubles who want to keep track of what’s going on.

What Should I Be Coiling For?

Let’s start with the symptoms, since these are the most accurate clues as to what is happening in my body.

  • Heart problems: third beat, chest pain, shortness of breath with minor exertion.
  • Intestinal troubles: constipation turned into urgent diarrhea today.
  • Tingles: this morning I had a tingling sensation in my right leg. This afternoon I have a dull ache on the right side of my body.
  • Eyes: lots of floaters, which I’ve had for a bit over a week but always forget to write down.
  • Musculoskeletal: pain in my right ribcage, pain in my hands, esp the bones
  • Night sweats: after several days of no sweats or waking up only slightly damp, I had a night sweat last night that was big enough to require a shirt change.
  • General: intermittents headaches, fatigue

The first two symptoms, I’ve now decided should be allocated to Bartonella. The tingling could be Bartonella or Lyme. The eye and bone problems are classical Lyme symptoms. The night sweats could still possibly be Babesia or might just be Bartonella, which sometimes has given me night sweats even when I had no other Babesia symptoms. And the general symptoms could be any of the infections.

I’ve been coiling the full protocol for Babesia for 11 days now (with one day skipped to do Lyme). I promised myself I would do it for at least two weeks. To give myself 14 full Babesia sessions, I’ll continue doing the full protocol until March 5, then I’ll stop coiling for Babesia altogether. At that point, I’ll go back to coiling my entire body for Bartonella every day, not just the key parts that keep me going while I work on Babesia as well. The big question is: Do I need to coil the back of my head even more for Bartonella, to get to the final push against the infection?

Meanwhile, I wasn’t planning on coiling for Lyme again until Saturday. But now I’m reconsidering, and I think I’ll do it tomorrow.

Disclaimer

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Relentlessly Positive

Saturday, February 22, 2014

Out of curiosity, I decided to get another Lyme Western blot test. One of the things I learned was that when the Lyme infection dies down and has less of a hold on the immune system, a person is more likely to get a positive result. While I was at it, I decided to get tested for the standard co-infections. I got my results today.

For the first time ever, I was CDC positive on a Lyme test. It was humorous, at this point, to get this result. In the past, I’ve had several positive bands, always at least three positive Lyme-specific bands. This time, I had five positive Lyme-specific bands and one additional positive band. I’ve known for the past six years that I have Lyme, but somehow, now that the symptoms are less overwhelming, it is still gratifying to see proof in my immune response. While was at it, I had PCR tests of my blood for Lyme. Those came back negative, as I expected. I think that whatever Lyme bacteria are left are in my joints, and my central and peripheral nervous systems. There is no reason for the bacteria to spend any time in my blood, especially now that I’m making antibodies to them.

I got tested for a whole host of co-infections: Bartonella hensalae, Babesia microti, Erlichia (HME), and Anaplasma (HGA). All of these came back negative, which only means that I didn’t have detectable free antibodies to the infections. In the past, I’ve had a positive Bartonella test. I’ve never had a positive Babesia test, although empiric treatment to my symptom profile yielded temporary remission of Babesia symptoms. I’ve never been tested for HME or HGA before. I have no idea if I carry either infection, but I’ll eventually use the coil machine to test frequencies for these infections. I’ll decide based on my body’s response whether it is likely I have these infections.

I wasn’t sure whether it was worth getting tested again. In fact, at this point, it was mostly out of curiosity about my immune system rather than which infections I might have that drove my desire to get tested.

Heart Troubles

I’ve been struggling the past few days, as well as intermittently over the past few weeks, with a dull ache and pressure in my chest. It feels like there is something wrong with my heart. Of course, I already know what’s physically wrong with my heart: a tricuspid valve prolapse. It’s just that for long stretches of time I have no symptoms. I don’t hear anything wrong with my heartbeat. I don’t have pain in my chest or fatigue. I don’t get palpitations or a funny sensation in my throat. I forget about it.

Then there are periods like the last few days, when the irregular heartbeat, the pain in my chest, the fatigue, the feeling that my throat is restricted, all add up to make me feel like there is something terribly wrong. I’ve been to multiple cardiologists. They haven’t offered to do anything other than to monitor the situation.

When I get hopeful that I’m near the end of being sick, that I’m headed back to a normal life and regular work, this symptom, in particular, is the one that pulls me back towards the dark side, where I feel like I’ll never be myself again.

Heart Troubles: Interpretation

The most time I’ve gone without heart symptoms is when the Babesia was in it’s dormant state. Babesia seems to be the infection that gives me the most grief when it comes to cardiac troubles. These past few days, I’ve increased my Babesia coiling to the full protocol (see yesterday’s post). That might explain why I was so exhausted the day before yesterday, or why I’ve been having cardiac symptoms yesterday and today.

In the past, when I was coiling the full Babesia protocol daily, my Babesia symptoms got worse. I’ve been lucky this time not to have debilitating headaches or extreme light sensitivity. I think maybe I’ve gotten rid of a big part of the infection permanently. The night sweats haven’t returned with increased coiling, but I woke up last night, for the first time in about a week, feeling slightly damp. Only my skin was damp, my shirt was dry. It seemed more like a Bartonella night sweat, light and hot, not soaking and cold. Still, I can’t really  be sure. The only significant change with Babesia coiling is the increased cardiac symptoms.

My current plan is to coil for Lyme today, since it’s been a week, and because occasionally, Lyme has been the source of my heart troubles. Then I’ll go back to a full daily Babesia coiling protocol for the next six days and see what happens.

Other Symptoms

Besides the heart troubles and fatigue, my main symptoms have been the recovering hemorrhoid (yay acupressure!), moderate but distracting pain in my sacrum, and intestinal troubles. They are all in the same region of my body. I don’t really know what is going on in there. I’d like to have more hours in a day to coil my sacrum for everything under the sun (or at least a larger selection of frequencies). With any luck, coiling for Lyme today will give me a few days of relief. Otherwise, this will be something I live with for a while until I get the Babesia symptoms to go away.

Disclaimer

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Lyme Indignities

Wednesday, February 19, 2014

This is dedicated to all the folks out there with chronic Lyme Disease and all the other chronic illnesses that have a digestive tract component.

Before you read on, however, be forewarned that the topic is hemorrhoids, so it might get a bit gross.

First and foremost, hemorrhoids suck. They are the true, literal, pain in the ass, the one that no one likes to talk about. In addition to being painful, they are distracting and embarrassing. They feel like a personal insult on top of all the other symptoms that come with chronic illness. I, for one, could do without them.

In the beginning…

I never got hemorrhoids before my 2001 tick bite. I’d had many cases of really bad constipation, even one in childhood that landed me in the emergency room. But I never had hemorrhoids.

They started with the tick bite that gave me Lyme Disease. They appeared from time to time, usually with my period or with diarrhea or both. They usually went away in a day or two. They were annoying, but not too painful. I didn’t really talk to a doctor about them, but I did tell my acupuncturist. He gave me an ume (Japanese plum) paste to take when they appeared. That usually got rid of them overnight, at the latest.

In 2007, when I came back from China with a case of diarrhea that wouldn’t let up, I had my first exploded hemorrhoid. It was horrible. I didn’t know why the toilet bowl was full of bright red blood or why I had some on the toilet paper. I was mortified. I was terrified. I went to the doctor that time.

The doctor took a look at my hemorrhoid. She poked it with a gloved finger. She told me I needed to do something about the diarrhea (like come back if it didn’t go away in a few days) and that I shouldn’t “push.” Great. I didn’t think I was pushing. But I was. After most of the diarrhea was gone for each sitting, it felt like there was more to come, so I pushed. Yuck.

I freaked out so much that I convinced myself, while sitting in the waiting room before the appointment, that I had a sexually transmitted disease. She thought I was being ridiculous. I wasn’t sure where I would have gotten one from, but I was panicked by the bright red contents of the toilet bowl. She humored me. (All the tests came back negative, thank goodness, because I ended up with so many other problems shortly thereafter.) She also told me to buy red food dye and put three drops in the toilet. She said three drops of blood could do the same thing. I never bought the food coloring, but I understood.

Since then, I’ve had hemorrhoids on and off. They used to come with my period, back when I had the worst of them, with diarrhea, low blood pressure, weakness in my legs, chills, shakes, etc. As my menstrual cycle has gotten closer to the “normal” symptoms, mostly cramps, I only get a hemorrhoid if I overdo it when I should be resting. This is true during my period especially, but also occasionally when I overdo it at other times, engaging in physical activity for too many days in a row without a rest day.

Generally, these hemorrhoids last only a day or two. All I have to do to get rid of them is rest. Sometimes doing a yoga pose, downward dog, helps speed the healing. They were irritating but didn’t hurt too much, until now.

Hemorrhoid from Hell

This month, my period was not such a big deals. Cramps for two days. Obvious fatigue for one day. But that one day, I didn’t stay in bed. I went out to eat. I went to Costco. I did lots of things that didn’t include resting. I didn’t rest the next day either, even though I felt worn out. I just didn’t want to.

Then it popped out. The hemorrhoid from hell.

This most recent hemorrhoid has been different. It is accompanied by pain in my sacrum and by spasms in my colon. That’s right. As if a hemorrhoid wasn’t enough, I had to suffer through the indignity of going to the bathroom every 20 minutes for two hours, sitting there, in pain, waiting for some movement to relieve the pressure. I was actually angry at my anus. (That is a crazy idea!) After I finished in the bathroom, I felt some relief, until the next wave of feces reached the exit. Then the pain started in earnest again. To complete the experience of having colon spasms, I started having explosive gas. The poor little vein in my sphincter was getting rocked by gas and, as a result, torturing me.

This hemorrhoid hurt a lot more than any of the previous ones. I couldn’t concentrate. I didn’t really know what to do to help it calm down.

I tried my usual tricks, resting, reading all day for three days (thank you, Veronica Roth), a few downward dog poses. No deal. It still hurt like hell. My intestines were still a mess.

Next I tried taking a bath, twice. Supposedly those help hemorrhoids go back into the tissue. No deal. Two hot baths (which I enjoyed immensely as I kept reading) made me feel relaxed but had only a short term (about 30 minute) effect on my hemorrhoid.

Finally, I thought about acupuncture. I looked up some points to treat hemorrhoids. Holy moly. I could feel the difference right away. I pushed on a few points on my spine and the top of my head. I could feel my sphincter relax and let the hemorrhoid start to move back into place. Unfortunately, the hemorrhoid hasn’t quite gone away. But it hurts a lot less than yesterday. Meanwhile, I keep going back to those points, as well as one I found later on my wrists, and the pain lets up pretty quickly. Unfortunately, the hemorrhoid decided to bleed again, even after I did all the points.

What does a Hemorrhoid Mean?

This is a thoroughly non-scientific explanation of what I’ve come to think about hemorrhoids and Lyme Disease.

First, I think about what I know from acupuncture and what has worked for me. The hemorrhoids seem to come when I overdo my activities and haven’t rested enough. The points that work best are the ones that tonify my Yang. So I look at it as depleted energy and inability to do activity. When I read about depleted Yang, I see that many of  symptoms describe my current experience. (I’m adding some Yang tonifying foods. Maybe they will help, but that isn’t the point.)

I’m looking at my body’s limitations and recognizing that I want to do so much, and as soon as I have a little bit of energy, I do too much. I wish I had more reserves. Meanwhile, even when I don’t have energy, I’ve been forcing myself to do exercise (walks, yoga, even a bike ride). Maybe my body is telling me I have to do a better job pacing myself and listening to my needs and not forcing activities. It’s hard. I’ve learned this lesson before, and I want desperately to be well enough that I can do whatever I feel like doing without having to worry about such things.

Second, I coiled to see what was happening and learned something. I could tell that whatever was happening in my hemorrhoid was also affecting my intestines and my sacrum. So I coiled my sacrum, knowing that the nerves that come out of it control both locations. They are also the ones connected to the tingling down my right leg that reappeared during the three days of rest. I coiled for Lyme and I coiled for Bartonella. With both frequencies, the hemorrhoid pulsed (gross!) immediately after I stopped coiling. This leads me to wonder whether the hemorrhoid is not only a symptom of too much activity, but also a result of some of the biofilms around my nervous tissue starting to lose ground to the coil machine. I’m hoping that it’s actually a sign that I’m making headway against these infections.

Third, I go back to the principles of naturopathy. One of the ideas is that when healing, especially for chronic illnesses, symptoms reoccur in the reverse order of how they originally appeared. I like this idea the best. The last time (and first time) I had a hemorrhoid this bad was in 2007, right before I lost the ability to move my legs. It was the first of the big symptoms that eventually became a torrent of problems and turned into a disability. It would be awesome if I’ve climbed my way that far back towards health. I imagine that the hemorrhoid is a gateway, and that when I get through it to the other side, I will be well enough to exercise and write daily and do more of what I want in the world.

Finally, a hemorrhoid is just a hemorrhoid. It is painful. It sucks. It means I have to be very careful when I’m on the john. It is a (hopefully) temporary annoyance that I’ll be able to forget about, or if not, that I’ll be able to laugh at.

Other News

During the hemorrhoid from hell saga, I’ve been doing full body coiling sessions for Babesia (570Hz). It occurred to me after I wrote the last post about protozoa that when I’ve gotten rid of Babesia in the past, I did full body coiling sessions daily for several months. I hoped I could get away with just coiling my liver, spleen and chest, but I still had the night sweats, a few days on and a few days off. So before I began testing another set of frequencies (which I’ll still do if this doesn’t work), I decided I should spend a week, at least, doing full body coiling sessions for Babesia. Since I started three days ago, I haven’t had a night sweat. I’m sleeping better. I fall asleep more easily at night. I was starting to believe that doing my whole body would make no difference, but it has. So I’ll continue on for a week or two or even three, and see if that solves my night sweat problems, or if they’ll return every few days.

Babesia 570 Hz

Morning

  • chest – 10 minutes

Afternoon

  • liver – 10 minutes
  • 1 minute on each of the following locations
    • head: each side, top, back
    • between legs: thighs, knees, calves
    • feet through coil
    • each shoulder knob
    • each side of ribcage
    • each ilium front
    • each hip bursa
    • pubic bone/lower abdomen
    • each ilium back/side
    • each butt cheek (to the iliac crest and joint in my butt)

Evening

  • spleen – 10 minutes
  • 1 minute on each of the following locations
    • each shoulder blade
    • spine: upper, middle, lower

I’ve been doing the protocol above as I also coil for Bartonella. That is why it’s broken up along the day. I’ve modified the Bartonella protocol to fit in all the Babesia coiling time.

Bartonella 832 Hz

Morning

  • back of head – 10 minutes
  • liver – 5 minutes
  • spleen – 5 minutes
  • head: each side, top – 2 minutes each
  • spine: upper, middle – 2 minutes each

Afternoon

  • back of head – 10 minutes

Evening

  • back of head – 10 minutes
  • abdomen – 5 minutes
  • chest – 5 minutes
  • sacrum – 5 minutes

Once I am sure the Babesia is no longer active in my system, I’ll go back to doing daily coiling sessions for Bartonella that cover my entire body, not just the key parts.

Disclaimer

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Protozoan Perplexities

Saturday, February 15, 2014

Protozoa are the single-celled infective agents behind Babesia. They are a different kind of organism than bacteria, which is why most antibiotics have no effect on them. The drugs we take for protozoan infections were developed for Malaria, one of the most deadly and well-known of the infectious protozoan species.

I never tested positive for Babesia. My doctor made a clinical diagnosis, partly based on my symptoms and partly based on the fact that I didn’t seem to be getting better as we treated for Lyme Disease. The antimalarial drugs I took made me feel much better when I first started each course of them. The night sweats got worse for a short period of time, then they went away. Then I started having some energy and the antibiotics I was on seemed to work better against the Lyme infection. It seemed like a correct clinical diagnosis. Unfortunately, after extended treatment, the symptoms would start up again, then get much worse when I stopped each antimalarial drug altogether.

I confirmed the Babesia diagnosis, at least from my perspective it was a confirmation, by coiling for a Babesia frequency. I had a pretty obvious reaction to 570Hz after only 15 seconds. My heart pounded so hard, I thought it was going to burst out of my chest. Twice, now, I’ve gotten rid of all the Babesia symptoms, and I assume, the active Babesia infection, for extended periods of time using my coiling protocol for 570Hz. The first time it was for 8 months. The second time for over a year. I think I triggered a relapse recently when I ate egg-containing foods.

This time, the night sweats have been a little different. Instead of waking up feeling ice cold and all wet, I don’t seem to get so cold. I wake up wet. I’m not overheated, the way that I get with Bartonella night sweats. I’m not sure if it is because I have on lots of blankets, though that never helped me before, or, more likely, that something has changed.

Lately, I’ve been trying to figure out what changed. The first thing that came to mind was to see if I had a different protozoan infection that has become activated as the other infections are on the decline. I tested for Protomyxzoa at 515Hz for four days. (More on that below.) My conclusion is that 515Hz did something, but I’m not sure if it is the key issue. I will coil for it more soon.

The second idea I’ve had is to try the other Babesia frequencies: 753Hz and 1583Hz. Back when I got my coil machine, I spoke to several people who had tried coiling, not all of whom I stayed in touch with, and one of them said that there was no point in coiling at 570Hz because only 753Hz will really get rid of Babesia. When I tried 753Hz, nothing seemed to happen. However, I’m considering trying it again to see if addresses this new kind of night sweats. I’ll also try 1583Hz, while I’m at it, to see what happens with each frequency.

Protomyxzoa Coiling Report

I coiled for Protomyxzoa, 515Hz, for four days. I got some kind of reaction, but nothing so spectacular as I did when I first tried 570Hz.

Day 1

  • chest – 5 minutes; abdomen – 5 minutes
  • no immediate physical reaction; a few hours later, fatigue that made me feel like I needed to lie down, pressure in my chest; heart palpitations; severe pain in left arm lasting 15 minutes; hyperaware peripheral vision; 2 night sweats that fully soaked my shirt; tired shortly after I got up the next morning

Day 2

  • back of head – 2 minutes; abdomen – 3 minutes; spleen – 5 minutes
  • no immediate physical reaction; a few hours later, but sooner than day 1, severe fatigue, worse than day 1; racing mind; heart palpitations; chest pressure; hyperaware peripheral vision; 2 night sweats, but not as bad as day 1

Day 3

  • sacrum – 3 minutes; abdomen – 3 minutes; liver – 5 minutes
  • no immediate physical reaction; an hour later, moderate fatigue with inability to concentrate; heart palpitations; 1 night sweat

Day 4

  • back of head – 3 minutes; abdomen – 3 minutes; chest – 5 minutes
  • moderate fatigue shortly after coiling; inability to concentrate; heart palpitations; no night sweat

I’m hopeful that whatever 515Hz is doing, that in the near future I can coil aggressively and get rid of all the symptoms in a short time. But somehow, it doesn’t seem to be treating what I think I’m dealing with.

Menstrual Progress

All the night sweats and fatigue as a result of coiling for 515Hz are somewhat muddled because the day after I finished the 4 day coiling test, my period arrived. I tend to get worse night sweats as part of PMS (though not 2 soakers in one night) and my fatigue gets worse, too. This month I’ve been tired, but with a desire to do more than just lie around. Deciding to be physically active, even minimally so, tends to wear me out pretty badly at this time of the month, as it has these past  few days. I’m exhausted and ready for a nap, even as I type. In fact, it has taken me two days to write this post, which is unusual for me. (I usually write until I’m done with a post and publish it right away.)

That being said, I’m on my second month of DIM as the only supplement I take for balancing my sex hormones. My period came after 28 days, more like it used to be when I took metformin. I’ve been exhausted and had heart palpitations and a hemorrhoid to go with cramps this time around. This is actually much better than last month. I didn’t even get diarrhea this time!

I was so tired that I decided to skip coiling for two days and I’m starting up again today. It is a Lyme coiling day. I’ll get back to Bartonella and Babesia tomorrow.

Speaking of hormones…

I’ve stopped gaining weight. My body has been at about 162lbs for three weeks. This is good news, even though I’d prefer if it settled at about 20lbs below the current weight. I haven’t tried to lose weight, not yet anyway, just stop gaining.

I was pretty panicked about the incessant weight gain and persistent fatigue (though I recognize that hormones might not be the source of the fatigue), so I got my thyroid hormone level tested. It came back normal. At least that’s one fewer thing to worrying about.

Disclaimer

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Slow Burn

Wednesday, February 5, 2014

The past week or so, I’ve been feeling lethargic and unmotivated. I feel like I’ve stepped into a zone where I need to try something new in order to make progress in healing. On the agenda was triggering Lyme with a vaccine that I need to get anyway. When that didn’t work, I decided it was time to test out a new frequency.

Mario (orange) & Luigi (white)

Mario (orange) & Luigi (white)

But first, a little fun news. My husband and I adopted cats last Thursday. Mario and Luigi, two fun little kittens who are shaking things up around here. They (mostly) sleep at night in their preferred location between us humans. They run around and play. But when we sit still, they join us for some lap-napping.

Slow Burn: Bartonella & Babesia

I’ve continued to coil for Bartonella and Babesia every day. The Babesia night sweats petered out until two nights ago when they finally stopped. I no longer have obvious Babesia symptoms. I plan to keep coiling for Babesia for another 2-3 weeks, to make sure the flare is gone…unless the symptoms return after my next vaccine.

Bartonella symptoms continue to diminish. The tingling in my limbs gradually disappeared, and I haven’t felt it in about 4 days. I still show signs of Bartonella herxes, particularly constipation (or difficult passages) and perpetually renewing acne on my butt. Otherwise, I seem okay.

Slow Burn: Lyme

Last week, I kept meaning to coil for Lyme and not getting to it. There were things going on every day, not giving me the opportunity to squeeze in 4 coiling sessions in a single day. I decided on Thursday night to wait until Saturday, when I would take my first rabies vaccine dose. One expected possibility was a flare of Lyme symptoms. That didn’t happen, but I was feeling pretty down and out on Thursday, Friday and Saturday. After I coiled on Saturday, I felt better. I’ve been feeling a little better since then, but I had no herx. It might be (fingers crossed) that the Lyme is at a low enough level, when I don’t triggered it, to cause a herx that is so small it is below my level of awareness.

Since the vaccine didn’t trigger a Lyme flare, I decided to try out a few other frequencies this week, to see if any of them caused any symptoms or made me feel better. In the meantime, I have another vaccine scheduled for this Saturday. That’s when I will next coil for Lyme.

Vaccination schedule

This summer, my husband and I want to go on a trip outside the country, possibly camping. We have a destination in mind, but it isn’t set in stone. It depends on how well I’m doing. In preparation for the trip, we needed to be vaccinated for two infections: rabies and typhoid. What a world we live in. I have a slow burn illness that doesn’t kill but can take years off a person’s life, like it has done to me, but there are way worse, fast killers out there in other parts of the world. Rabies is 100% fatal if the infection takes hold. We’ve both already been vaccinated against Hepatitis A&B, so we’ve only got those two other infections to worry about.

I read up on vaccines and learned that they often trigger Lyme symptoms in patients who thought their Lyme was gone, or at least was in remission. The same is true for Chronic Fatigue Syndrome and Fibromyalgia patients. I decided to get the vaccines well in advance, just in case. I went to the travel medicine doctor expecting something bad to happen.

After I got the dose, my throat started to feel constricted. I got very congested in my sinuses and bronchial tubes. Instead of a Lyme flare, I feared I was having an allergic reaction. I asked my husband to drive to the hospital so I could sit in the parking lot and wait to decide if it was getting worse or going away. While we were there, Joe felt a lump in his throat and got a little congested. We decided, after checking my pulse (normal, not tachycardic) and my lungs (no wheezing), to go home and rest. We were both tired and congested the rest of the day, but that was it.

Next Saturday, I get my second rabies dose and my only dose of typhoid vaccine. I elected to get the injected version. The oral version is cheaper, lasts longer, and is contraindicated for people with immune problems or digestive tract problems. I’m not sure if it would be problematic for me to take the oral version, so I’m going with the less-is-more approach and taking the weaker vaccine.

In three Saturdays, I get my last rabies dose. Then I’m stopping the vaccine circuit for a while. I have one left to get, Tetanus, which I’ll do at my annual check up (the first regular doctor visit in several years) at the end of March.

I wonder if I’ll have a stronger reaction to the subsequent rabies doses or the other two vaccines. If not, I’ll go back to triggering Lyme with eggs.

Slow Burn: Testing New Frequencies

I have a lot of resistance to testing new frequencies with the coil machine. First, I’m overwhelmed by the number of frequencies I think I should try. I have a two page list of the frequencies, along with the capacitor settings, taped to the wall above my coil machine. Sometimes, when I think I should test them to see if my body reacts, I psych myself out, trying to figure out which one to do first. That alone has paralyzed me for months. Second, I resist trying them because I don’t want to find out I’m going to have to spend another year, or more, coiling for other infections. From that perspective, it would make more sense to start sooner, but mostly, I don’t even want to face the possibility. Lastly, I feel like I have no time in the day to start coiling for a 4th infection. That is just too many. So I’ve been delaying for several months.

The time wasn’t completely wasted because I made major headway against Bartonella. Now, however, my coiling for Bartonella is more focused, as it is for Babesia. My coiling for Lyme is less frequent. And my plan to trigger the Lyme isn’t working quite the way I expected. Plus, I’ve been feeling washed out and generally unmotivated many days, with a recurring thought that another infection is eating away at me.

To get started, I changed my Bartonella protocol (see previous post) to free up 10 minutes of coil time in the middle of the day. I cut the amount of coiling on my sacrum and on the top of my head to five minutes each. These I do at night.

To cut through my own nonsense, I just picked the next frequency on my list: 690Hz. It is ostensibly for Mycoplasma fermentans, which I can’t quite imagine I have, but who knows. It is also listed as a possible Lyme frequency, and one of the general frequencies that gets used for tons of ailments.

Each day I pick where to coil. It seems almost random, in part, because it is. I don’t know that much about M. fermentans. What I’ve found online is confusing and contradictory. I’m flying blind here, or more accurately, I’m doing an observational experiment. I’m trying the frequency on a few locations to see what happens, just like I did at the beginning with Lyme and the other infections.

Monday: back of head – 1 minute, sacrum – 1 minute, chest – 3 minutes, abdomen – 5 minutes

I felt a pressure in my upper chest, just below my collar bone as soon as I started the back of my head. It was mild but noticeable. It stayed at the same intensity level for the full ten minutes. That night, I had problems with concentration. The next morning my bowels were looser (what a relief from Bartonella!) the way they would get when 432Hz still gave me a mild herx.

Tuesday: back of head – 1 minute, sacrum 3 minutes, spleen – 3 minutes, abdomen – 3 minutes

I felt a pressure in my upper chest when I coiled my head. It got much worse when I coiled my spleen. No further increase in intensity when I coiled my sacrum or abdomen. I got sleepy after I coiled. Today, looser stools again and joint stiffness and aches in the morning.

Wednesday: spleen – 5 minutes, liver – 5 minutes

I felt the same pressure in my upper chest, worse than Monday but not as bad as the worst of Tuesday. The pressure lasted longer this time, several hours.

I’ll continue to play around with 690Hz this week. I haven’t decided if I’m going to make it part of the daily coiling program or if I’ll test a few other frequencies, to see if a different frequency gives me a bigger herx.

In the past, I tried 310Hz for parasites. Nothing noticeable happened, neither feeling better nor herx symptoms. I haven’t completely discarded the frequency from my listed because I only tried it for one day.

Slow Burn: Body Weight

This week was the first week in a while when my body weight didn’t increase by another pound. What a relief! I’ve become concerned about the never-ending weight gain. I decided to have my thyroid hormones tested. Many other women in my family have had low thyroid, at a far higher frequency than the 1 in 8 that women in the United States experience. No results yet, but it is on my mind.

I went to yoga for the first time in several months. Thirty pounds really does change the balance of a body. I was stiffer than before, but that’s expected from my increased muscle mass and the lack of stretching for so long. What was harder was all the extra body fat that I know I have but didn’t realize would change my positions. Just bending forward, I noticed I needed more room for my belly. Yoga felt different.

I’m visualizing being more active, prioritizing going for a walk, run, bike ride or yoga class every day. Most days, I think it will be a walk, but maybe some other exercise twice a week for starters. I don’t expect to lose weight through these activities, but I’d love to stop gaining it.

The same goes for my diet. I’ve cut way down on my carbohydrate intake, returning to my favorites: protein, vegetables, and nuts. I’m hoping that this will help even out my metabolism.

Elephant Seals at Año Nuevo State Park

Elephant Seals at Año Nuevo State Park

I had a moment to think about size this weekend. I went to Año Nuevo State Park on a guided tour to see elephant seals. A sizable number go there to breed in the winter (and to molt in the summer). The females weigh about 2000lbs when they arrive. Once on land, they give birth to a 60lb baby. Then they nurse for about a month, not eating the entire time they are on land, and mate before they get back in the water. The babies gain 140-190lbs in that month. Wow. They look like used cigars, lolling around on the beach, barely able to move by the end of the month. Meanwhile, there are 5000lb males guarding groups of 20 females with their pups as well as the weaned babies that got left behind. Alpha males fight hard to protect their harem from other males. It was quite a sight to see these huge animals with their giant fat rolls bumping against each other and biting each other’s flanks.

Mammal bodies, including human bodies, are pretty amazing.

Disclaimer

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(Re)Defining Health

Monday, January 27, 2014

I had quite a week last week. I was busy at the beginning of the week, with errands and other planned activities. Then a few stressful, unexpected, time consuming things happened that I needed to deal with. Over the weekend, I found myself feeling agitated, stuck, listless and exhausted, both physically and emotionally.

It got me to think about what I mean by becoming healthy again. In some sense, it isn’t purely about being free of symptoms or infections. It is more than becoming physically strong again. It is more than wanting my various bodily systems to function the way they are supposed to. All these things are prerequisites to health, but not the defining concept.

I think that health is the ability to respond to stressors (physical, emotional, psychological, even financial) in a way that resolves the crisis (big or small) and allows the person to continue functioning well. I realize that even at my healthiest, I needed extra sleep after an emotional trauma (which usually involved lots of insomnia). I know that I’ve gotten colds and other respiratory infections when I didn’t sleep enough, got too cold running around NYC in the winter, and was stressed out about work or school. But I would get over the colds rather than having them pile on one after another until I was knocked out. (Except when I wasn’t healthy and ended up with walking pneumonia, but that is precisely the point. When I wasn’t healthy to start with, I was a target for every germ that came my way.)

What I’ve been experiencing these past few months is greater and greater resilience to stress. I’ve had more energy and greater endurance, in fits and starts, since the end of the summer. I’ve been able to try things, to be outside and be active. I’ve pushed my own limits. I could see that I was reaching a point where the Lyme was dormant, the Babesia was dormant, and the Bartonella was getting weaker. I could see that my body was starting to belong to me again.

But that wasn’t enough. I want the infections gone because life is full of stresses. Whether it’s an emotional upset, a flu, overdoing a workout, getting a mild case of food poisoning or any of life’s little curve balls, I want to be able to respond and not end up debilitated with multiple raging infections again.

This is yet another reason I’m repeatedly triggering the infections. If I keep triggering them, I expect to be able to get rid of the stores of dormant bacteria and cease being threatened that they will return. I’m also learning that even though I’ve been feeling physically better, I can expect to feel much better that I do already.

I spoke to a woman this weekend who said she had cured herself of Lyme: No symptoms for three years. As long as we talked directly about the treatments she used (antibiotics, supplements and diet), she was insistent. But when she told me how her life was going, she sounded sick the way I was sick before I knew I was. She never got back to the energy and concentration she had before she got infected. She was frazzled. She has eye problems that sound to me like what many people with Bartonella have described to me, and that I experienced back when Bartonella was my only infection. To me she sounded like she settled on being “done” with Lyme when the headaches and joint aches and overwhelming fatigue were gone. She wanted to be done so she was, even though there are lingering symptoms. I can’t argue with her about her decisions. I can say only that half-way is not enough for me.

I want to be healthy again. I want to have enough reserves to deal with small and large stressors without having a meltdown (physical and emotional) in response to every little thing. I want to be able to miss one night’s sleep without being thrown off for a week. I want to get beyond the limitations imposed by these infections, then go one step further, to become the person I remember being, a resilient woman who could handle any challenge I faced.

The Second Eggs-periment

Last week I had another cookie containing eggs. Once again, I kept track, hour by hour of what happened. Overall, it wasn’t as bad as the first egg experiment, partly because I knew what to expect, and partly because I did it at night and slept through many of the symptoms.

This is what happened.

Jan 20

  • 5:50pm – eat a peanutbutter cookie
  • 6:00pm – changes in vision in my right eye, blurriness in the outer periphery of my field of vision, continues for over an hour
  • 6:15pm – pain in left eyeball, headache on right side of head
  • 6:30pm – pain on right side of head continues, pain in back of head, pain in right shoulder
  • 6:45pm – pain in back of head gone; pain in right eye and surrounding area of face and head, pain in left wrist, pain in right shoulder disappears, left rib pain (associated with the wheat in the cookie)
  • 7:35pm – pain in right side of head continues, right eye vision disturbance partially resolved, left quadriceps pain, dull pain on entire right side of body, sharp pain down outside of right leg, feeling cold all over
  • 9:40pm – coiled for Lyme on my central nervous system, back of my head for Bartonella, blood stream for Babesia
  • 10:30pm – vision disturbance is gone, dull pain on the right side of my body continues – including headache, pain in left eye returned, headache on left side above the ear to the top of my head, still feel very cold
  • overnight – no sweats or insomnia, woke at 8am feeling chest congestion but otherwise not bad
  • next day – nausea after eating breakfast, joint aches during the day, heart palpitations, felt cold. did a full body coiling session for Lyme and additional coiling for Bartonella and Babesia

My impression since the second dose of eggs is that I feel more Lyme-y. My hard won resilience is waning. I’m more achy. My ribs hurt more after eating wheat. I have random aches and pains. I’m more tired. I’m slower. I feel stress more deeply. I have night sweats most nights. My intestines are irritated and vacillating between constipation and urgent movements, with recurrent background of abdominal pain.

I recognize that this could also come from the winter flare, though that shouldn’t start until this upcoming weekend. My gut feeling is that although I feel more symptoms, I’m actually waking up the infection, getting it more active, and living with the consequences. This isn’t a bad thing, even though it sucks to live through it.

Coiling for three infections

Back when I started coiling, almost three years ago, I was working on four infections at the same time: Lyme, Bartonella, Babesia, and Candida. I finished Candida a while back. But the other three still haunt me. During the year that I got rid of Candida, I was trying to keep Bartonella and Babesia from getting worse, without actively trying to get rid of them. What I was doing for Babesia turned out to be effective in whittling it away, so I ended up coiling enough to get rid of the active infection. But during that time, I coiled only a little for Bartonella, maybe 7 minutes a day.

That left two infections to deal with. Really, one is enough, and two is a full dance card. I coiled every day for Bartonella, covering my whole body, and learning through careful observation, where to focus my coiling time. I was coiling up to 40 minutes three times a day, most days. Then I coiled a little less on days when I also coiled for Lyme.

It is impossible to coil as much as I used to for Babesia, the amount that got rid of all the active infection (over 1 hour per day in three sessions), and also coil as much as I had been for Bartonella. Then on top of that, coil extra for Lyme every 4-6 days.

I’ve come up with a modified coiling protocol to get me through the series of triggers I’m planning. This will continue to knock down all three infections, but I’ll probably focus on one at a time at some point, to get to the end point for each.

Babesia Protocol

570 Hz

Morning

  • chest (heart & lungs) – 10 minutes

Afternoon

  • liver – 10 minutes

Night

  • spleen – 10 minutes

Goals: fully irradiate my blood supply three times per day, plus irradiate the key organs once each per day.

This is a daily protocol, to be done completely, even on days when I’m also coiling for Lyme.

Bartonella Protocol

832Hz

Morning (total=30 minutes)

  • back of head – 10 minutes
  • each side of head – 5 minutes per
  • liver – 5 minutes
  • spleen – 5 minutes

Afternoon (total=28 minutes)

  • back of head – 10 minutes
  • upper and middle spine – 5 minutes each
  • sacrum – 8 minutes

Night (total=28 minutes)

  • back of head – 10 minutes
  • top of head – 8 minutes
  • chest – 5 minutes
  • abdomen – 5 minutes

Goals: Irradiate back of head 3 times per day because this has been the most effective source of herxes and reductions in symptoms, irradiate blood supply twice per day, irradiate entire central nervous system, and irradiate intestines.

This protocol is modified on days when I coil for Lyme. On those days, I only coil the back of my head three times. If I have more time that day, I add an area of high blood flow to irradiate my blood supply.

Lyme Protocol

This is the same protocol I’ve been using for sometime. I break it up into parts during Lyme days to do as much as I can in each sitting until the coil gets too hot. I mix up each session to also include the necessary time for Bartonella and Babesia.

Unfortunately, I’m going to feel bad for the foreseeable future while I trigger and coil, flare and herx. It won’t be the totally debilitating illness it once was (at least I hope it won’t!), but I’m mentally preparing myself to feel crappy for the next six weeks, then take it from there.

Disclaimer

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How to be

Monday, January 20, 2014

When I first became disabled by Lyme Disease in 2007, I didn’t know how to be sick. Believe it or not, being sick and disabled requires a different skill set than being well and having a full-time job. The first year or so, I had to learn how to be sick in a way that allowed me to get on from day to day.

In the more recent past, maybe the last year or so, as my health has improved enough to have days with energy and with low levels of pain or short periods of pain, I’ve been learning how to be well again. I haven’t quite reached the point where I’m figuring out how to hold a full-time job again, but I am slowly learning to be well.

Unfortunately, I’ve forgotten how to be sick. I find that I am sick some days, and as I try more Lyme triggers, I expect to be sick for many days, even weeks, in a row. So I’m thinking about the difference between being sick and being well and how to be myself on each kind of day.

How to Be Sick

When I was first really sick, I didn’t know how to slow down. I moved in slow motion, but I had a long list of things I wanted to do every day. In the evening I felt guilty and disappointed in myself for how little I accomplished. It took months for me to try reading for pleasure or watching a video. In the beginning, I thought about work all the time and assumed I’d be back to work in a month or so, even as month after month passed by.

Eventually I started watching Star Trek: Deep Space Nine. It turned out to be a good distraction, helped me to lie still, and offered a heroine I could pretend to be in the form of Jadzia Dax. I still felt guilty after every episode, and when I watched 2 in a row, I berated myself.

At some point, one of my doctors, back before I knew it was Lyme and needed serious antibiotics (or something to combat the infections), told me what I really needed was a lot of rest. She was adamant that I find a way to stay in bed, not to fight my body to try to sit up and do what I thought I “should” be doing. Somehow that gave me permission to relax a little, believing that relaxing was my active contribution to helping my body heal. I also learned to read with abandon, devouring all 7 Harry Potter novels in a matter of weeks, actually just in time for the last one to be published.

Over the years, I’ve read a ton, watched more movies than I ever expected to, taken more naps than I can count, and slowed down a lot. When I can remember these things, it is a lot easier to be sick.

So, when I am sick, the first thing to do is take stock. What are my symptoms? Is there anything I can do to make them less intense, e.g., drink lemon water, detox extra, get my husband to massage my head and neck? Then I do them, either immediately or over the course of the day. Second, I convince myself to rest. Usually it helps to have an easy but engaging book to read. Then I lie down. And rest. And read. And nap. The only required activities for the day are eating and coiling. Everything else has to wait until tomorrow.

If I don’t follow this plan on a day when I am quite ill, I end up frustrated, angry at myself, and down about the world. If I follow the plan, I am able to accept a temporary setback and allow my body to regenerate to start the next day refreshed.

I am once again having trouble watching videos, but at least I have had the good sense to read and nap on some of the recent bad days.

How to Be Well

Learning to be well again is a different story. For so long, I’ve worried about using up all my energy for the day in the first hour or two. It was a legitimate concern because I often had only an hour or two of energy in me for the day. Over the past year or so, things have been changing. I have good days that last half or a whole day. It has been a struggle not to hold myself back from making a list of things I want to do and doing them because I’m worried that I might overexert myself.

So, I have learned to be well in a different way. If I seem well in the morning after doing my usual morning routine, I make priorities for the day. There is always more I’d like to do than what I can do, but often I can do more than I expect. Other times, I discover I’m much slower than I believe, and a few things take a very long time. Which brings me back to the priorities. Some days I prioritize exercise because I can tell I have energy to burn and bones to rebuild. I’ll go for a walk or run, soon I may add yoga classes back into the list. Some days I prioritize blogging, responding to email and other correspondence, returning phone calls, paying bills, etc. Some days I prioritize housework, catching up on laundry and dishes or dealing with a project that has been on hold for several months (like cleaning out my drawers for clothes to give away). Some days I prioritize going out, either for local errands, to the beach or out to eat. On these days, I might do something else as well, but I start with the things that I most want or need to do, then I move on to the next thing I want or need to do. I often have a bigger list than I can accomplish, but I do my best to decide what’s important, then stop when I run out of energy.

The trick is to save time to coil. As long as I coil among my other activities, I feel like I had a good day. When I do nothing on one of my good days, I have a hard time because I need the stimulation to keep me going. For so long I had to lie still or sit still. Now I need to move when I can.

Finally, even on good days, I run out of energy. When I get overwhelmed or tired, I lie down for a few minutes, maybe take a nap or if I’m not sleepy, read or knit. That allows me to slow down and get through the day.

I find it hard to switch back and forth between sick days and well days. It’s difficult to wake up each morning with no expectations carried over from the day before. I’m learning now to live in the moment and take each day as it comes.

Other Updates

Over the past week, I’ve continued to battle Lyme and the other tick borne infections, make decisions, and worked on the other chronic problems.

We stayed in the far cabin, enjoying snow with diamond dust sparkling in the moonlight.

We stayed in the far cabin, enjoying snow with diamond dust that sparkled in the moonlight.

My birthday was on Saturday. I turned 39 years old. I had a crisis on Thursday about my age and the number of years I’ve been battling Lyme. That day, my husband took me up to the Sierras to spend a night in a cabin. By the time we got there, I had cried and napped, and was able to relax and enjoy the little bit of snow that has fallen this year, as well as plenty of good food. We continued our trip, spending Friday near Lake Tahoe, then drove to Oakland, to stay with a friend. I had my first taste of Burmese cuisine on Friday night, then enjoyed dim sum with 5 people I love on Saturday morning. Sunday we went for bike rides (after which my energy crashed and my back hurt for the rest of the day). Today we went for a nice long walk, then I worked in the home office, catching up on things going as far back as Christmas cards(!). I decided that 39 is A-OK with me. I’ve learned so much in my first 4 decades on the planet. I feel brave, trying to truly heal using a coil machine and boldly triggering the infections. I still have plans and desires and dreams, some of which I’m already pursuing, and some more to start soon enough.

I stopped coiling on Thursday morning because my function generator died. I was able to get my hands on another one. However, the broken machine did a number on me. I was so depressed and frustrated that it made all the aging distress get amplified by a factor of 500. It was horrible. I still haven’t coiled, even though I have all the parts. I decided that I would take another set of Lyme and co-infection tests to see what I can learn about both the infections and my immune response. The blood draw is today. In preparation for the blood draw, I’m doing another egg exposure in the hopes that my immune system will be in an active mode. I’ll write about what the egg does in the next post. I also had plenty of wheat today. I’ve got my fingers crossed that I’ll get interesting results.

Since the last egg exposure, the Babesia is very awake. I’m back to daily nightsweats. After not coiling these past few days, I had to change my night shirt twice last night. Then I’ve had lots of tingling in my arms and legs, plus crazy dreams and long periods of wakefulness at night as the Bartonella reproduces without restraint. I’m looking forward to getting back to my routine. I’m also pondering how to coil smarter. I have three infections to coil for (Lyme, Babesia and Bartonella), each of which has responded best to coiling multiple hours a day. It isn’t really possible to do all of the full protocols every day. So I’m pondering the most effective parts of each coiling plan to develop something tenable to get me through until I’m done with at least Babesia. As I figure it out, I’ll post the protocols.

Finally, my period came on Friday. It was only 30 days since the beginning of the previous cycle. I had mild PMS, mostly cramps (but they might have been from Bartonella) earlier in the week, and a freak out on Thursday. The day I got my period, I had very urgent bowels with cramping, but no diarrhea, dry heaving but no vomiting, and pretty bad fatigue. I think my body has found a new balance without Vitex. My weight hasn’t changed yet, if anything, it still seems to be increasing. Yikes! I’m not sure quite what to do, if anything. In 2008, everything I did made me lose weight, but helped with the other aspects of the treatment program. Now, everything I do to trigger Lyme makes me gain weight. I’ll think about what I should be doing next and maybe try something new.

Disclaimer

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Shaky

Monday, January 13, 2014

In the days following the egg experiment, I’ve been feeling a little funny. It was obvious that eating a food with egg ingredients triggered my Lyme infection to become more active. I expected that. But then something else happened.

New Symptoms

It started on Thursday night. I was lying down and feeling serious pounding in my chest. My heart wasn’t racing, but it was a definite cardiac symptom. Then starting Friday, and every day since, I felt really tired during the middle of the day. I rested on Friday afternoon and napped on Saturday and Sunday. I may be headed for a nap very soon…

The cardiac symptoms have gotten worse. My heart races intermittently, sometimes for no reason, and sometimes because I walked up the stairs. This isn’t the normal increase in heart rate, it races really fast and pounds in my chest. Add to that, I’ve had several bouts of air hunger, when I felt like I couldn’t breathe, though when I concentrated, I could tell I was breathing just fine. Nevertheless, I felt like I couldn’t get enough air.

I’ve been having insomnia since Thursday night. I have trouble falling asleep, then I wake up really early (5-6am) and need an hour or so to get back to sleep. Then I sleep through till 8 or 9 am and feel too tired to get out of bed.

Finally, I’ve been feeling shaky. The shakes are in my arms and hands. I see the shakes, as though my blood sugar has dropped. At least that’s the sensation I feel. It happens right before I eat lunch. After I eat, the shaking stops, but I still feel shaky in my arms and legs.

These symptoms aren’t new, as in “never had them before,” but they are new, as in “haven’t had them in over a year.”

Triggering Everything

When I at a cookie containing eggs, I anticipated that Lyme might flare up, so might Bartonella. I could tell that the Lyme symptoms came on pretty quickly. I didn’t see much happen in the way of Bartonella. What I didn’t realize is that I might wake up Babesia after over a year of no symptoms.

I say to all who ask, I knew it would come back. Everyone I know in the coiling community who thinks they got rid of Babesia says that it takes several relapses before it is gone for good. Okay, fine. I’m accepting of that. In some ways, I feel good knowing that I can trigger it on purpose and get the next relapse out of the way.

To make sure it was Babesia that had returned, I coiled yesterday for 30 minutes on Babesia, 10 minutes each on my spleen, liver and heart. As soon as I started coiling, I got a severe headache, made worse by bright light. I had a night sweat last night, different from the ones I had in recent weeks, where I would wake up overheated and wet. This time I woke up wet and cool, not quite as cold as I remember with Babesia, but I had on a huge down comforter over flannel sheets which might have kept me warm for longer. I feel pretty sure this is Babesia. I’m following up with more coiling today.

I’m not enjoying the Babesia symptoms. They make me feel very melancholy. I feel like my whole life is an endurance test against so many tick-borne infections. I probably could have, at some point, done something incredibly drastic to force all the infections to be dormant (heat treatments or even more intense antibiotics than I was able to tolerate earlier), but I would still have the same problems hanging over my head that I do now. Dormant infections are waiting for any opportunity to come out. I’m hoping to use that against them and force them out, again and again, killing off the newly active bacteria, until there is no infection left.

Other Triggers

I want to go on a trip this summer, partly to celebrate my increasing health, and partly because I love to travel to new places. My husband and I were looking at what we need to do to prepare. We discovered a few vaccines were strongly suggested.

I’ve been thinking about vaccines a lot. Any website that includes the experiences of people with Lyme will strongly recommend against getting a flu vaccine, and some recommend against getting all vaccines. There are more than a few anecdotes that I’ve heard, as well as read, about people having relapses or massive, debilitating increases in symptoms after getting vaccines. The same kind of anecdotes appear on Chronic Fatigue Syndrome and Fibromyalgia websites.

I’m a little bit scared of getting vaccinated for anything. I don’t even consider the flu vaccine because my body is still pretty reactive to eggs, and the flu vaccine is normally cultured in eggs. But as I come up with a list of triggers to get the Lyme infection more active, vaccines are right at the top. I’m thinking about getting the vaccines for the trip fairly soon, several months out, so that if I do have a debilitating flare, I have enough time to coil through it.

Looking back to the big triggering event in 2007 that brought on all the symptoms of tick-borne infections, a case of food poisoning event while traveling in China, I knew something was wrong within a week after I was over the food poisoning. I had digestive problems (diarrhea, cramps, weight-loss) and, shortly thereafter, neurological problems (leg weakness, inability to move my legs, and severe fatigue). But looking back to the months leading up to the trip to China, I was having all sorts of mild neurological problems (inability to dial a phone, difficulty typing, difficulty making decisions, slowed cognitive processing, bouts of fatigue) that my doctor thought was overwork. It didn’t occur to either of us that these first symptoms came right after a Hepatitis A vaccine. I wonder now if that was the first trigger that woke up the tick borne infections that I was unaware I had.

No Good Answer

Someone recently wrote to me that he thought I should be cured by now using a coil machine for almost three years. I wish that were true. I thought, going into the process of coiling for Lyme, that either nothing would happen in the first three months and I would go on antibiotics again, or that I would see something happening (feeling worse from herxes and occasionally feeling better between them) and would need 5 years to complete the process.

I’m almost 3 years into coiling. I have made huge strides. I don’t take three handsful of pills a day while severely restricting my diet. I am now at a point when I have lots of normal days punctuated by the hard days. Today is one of those hard days, coming after a wonderful winter holiday. I’ve met people with Lyme who were treating it for 10 years on antibiotics and didn’t have the kind of good days that I’ve been experiencing.

So far, there is no good answer to Lyme and other tick-borne infections that become chronic. I’m hoping to find one by coiling. I still have, as my ultimate goal, to get rid of the infections completely, to eradicate them from my body. I haven’t answered the question that lingers in the back of my mind: what will I do if this doesn’t work? For now, I keep going, knowing that life is so much better this way than it was on antibiotics.

Disclaimer

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Evolving Protocols

Sunday, October 20, 2013

Almost three years into coiling and almost 7 years into Lyme-caused disability, I am the master of slow and steady. I can do what I need to do without deadlines. I am willing to spend my energy on what will help me get better. I’m willing to do the boring, repetitious activities (like coiling or following a special diet) that move me towards my goal of being healthy again.

And yet, sometimes I get impatient. This weekend is one of those times. I’m trying to figure out if there is a smarter way to use the coil machine to finally knock out Bartonella sooner than the way I’m using it now. I’ve been making steady progress on Bartonella for about a year and a half. I’ve had my setbacks, my mistakes, my attempts to change things, my process of reconsidering and trying something different. I still persist, but I’m tired of this infection.

I used what I learned from the other infections to inform what I do about Bartonella. I know that it grows quickly, like Babesia, and I heard that other coil users were coiling for Bartonella twice a day. So that’s what I did for a while. Then I noticed that the body parts that gave me the biggest herx reactions were my head, spine, abdomen, liver and spleen. So I focused on coiling those areas twice a day and coiled the rest of my body only once a day. It worked, in the sense that my herxes got bigger then slowly lessened, and my body got stronger. I learned from those results.

When on of my coils burned out and I had to try to keep up with the Bartonella using half the coiling time, I focused again on the key areas. This worked out well. I found that I herxed anew when I increased the time I coiled my spine and head, even though I was coiling each area only once per day. When the new coil arrived, I kept some of the increased coiling time and reduced the area of my body that got directly coiled twice a day. This again increased the herxing. The one place of increased coiling time that correlates most strongly for my increased herxes is the back of my head.

Eating all my treasured inflammatory foods and foods that I have sensitivities to also helped increase both the Bartonella symptoms and the herxes. But it’s too hard to keep that up. I spend too much time not feeling well enough to complete my still minimal daily activities. As I go back on the safe diet tomorrow, I’m thinking about how to coil smarter.

What I’ve come up with is a new Bartonella coiling protocol. This is much more aggressive than the one I started with, and more aggressive than each of the previous iterations. It is, hopefully, what will help me cross the finish line with Bartonella, and soon. I’d like to spend time figuring out what other infection(s) I still have to contend with to get healthy. But I can only coil so much in a day…

Bartonella Coiling Protocol

(Draft 7)

Frequency: 832 Hz

Morning (total 38 minutes)

  • Each side of head, 7 minutes
  • Spine: upper, middle, 7 minutes per
  • Spleen, 5 minutes
  • Liver, 5 minutes

Midday (total 36 minutes)

  • Between legs: thighs, knees, calves, 2 minute each
  • Feet through coil, 2 minutes
  • Each ilium front, 2 minutes
  • Each hip bursa, 2 minutes
  • Lower abdomen/pubic bone, 2 minutes
  • Each side of ribcage plus the adjacent arm, 2 minutes
  • Shoulder front and neck, 1 minute on each side
  • Shoulder blades, 1 minute on each side
  • Each ilium back, 2 minutes
  • Butt (underside), 2 minutes
  • Each butt cheek (up towards the iliac crest, for the joint and muscles), 2 minutes

Night (total 36 minutes)

  • Top of head, 8 minutes
  • Back of head, 10 minutes
  • Sacrum, 8 minutes
  • Chest including heart, 5 minutes
  • Abdomen, 5 minutes

Tomorrow might be awful if this does increase the herx level. But I will rejoice if it does because I really want to get rid of this infection as soon as humanly possible.

Lyme Coiling Protocol

Once I got into the mode of evaluating my coiling protocols, I took a new look at my Lyme protocol. I created it two years ago, in September 2011, when I talked to someone about what I needed to do to get through Lyme aggressively. That’s how I came up with doing three minutes on each location of my body.  Later on, I added time to my liver and spleen, to make sure I caught any bacteria that were infecting those organs or traveling around in my blood supply.

Today, I’m looking at the protocol with fresh eyes. I think that if I decide that on Lyme coiling days I’m skipping Bartonella, I can increase it to 4 minutes everywhere and maybe even more on key areas. This is the new plan, broken up, in no particular order, into three sessions, using two coils, over the course of a day.

(total 126 minutes)

432 Hz

  • Each side of my head, 4 minutes
  • Top of my head, 4 minutes
  • Back of my head, 5 minutes
  • Each shoulder front, 3 minutes
  • Each shoulder blade, 3 minutes
  • Each side of my ribcage + arms, 4 minutes
  • Chest, 4 minutes
  • Upper abdomen including bottom ribs, 5 minutes
  • Lower abdomen including pubic bone, 4 minutes
  • Each ilium front, 4 minutes
  • Each ilium back, 4 minutes
  • Each hip bursa, 4 minutes
  • Between my legs in 3 locations: thighs, knees, shins, 4 minutes per location
  • Feet through coil, 4 minutes
  • Spine: upper, middle, 4 minutes per
  • Sacrum, 6 minutes
  • Buttocks over my sit-bones, 4 minutes
  • Each butt cheek, 4 minutes
  • Spleen, 5 minutes
  • Liver, 5 minutes

Generally, I don’t expect there to be much more of a herx than last time (tired after coiling, long sleep at night, then groggy until noon the next day). But I see no reason not to get more aggressive, just in case I can kill a few extra bacteria.

Babesia

Since I’ve been having intermittent night sweats, I decided to do a short Babesia coiling session: 10 minutes on my spleen on Friday. It was a just-in-case, because I don’t want to have a huge Babesia flare up before I finish with Bartonella. I had a substantial night sweat Friday night, but I’m not sure if it was Babesia. I wasn’t cold when I woke up, just warm and damp. I also coiled for Lyme on Friday, so that could be the cause of the night sweat. Anyway, I’m thinking of coiling for Babesia on my liver and spleen, alternately, over the next few days…just-in-case.

Disclaimer

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