Coiling for Lyme

Trying to cure one case of Lyme Disease

Disulfiram Round 3

Two days ago, on October 19, I took 62.5mg of disulfiram. This is the third time I’m taking it, after stopping in the past due to side effects. Each of the past two times, I started with a different idea of where the disulfiram fits in my battle against Lyme Disease, and I have a new idea this time. Each time I stopped disulfiram, I could see the benefits, benefits […]

Continue Reading →

Disulfiram trial 2

I had such good intentions to write about what was happening with disulfiram as I took it. But then COVID-19 happened, and a sick housemate, and I got what I think was a mild case, and when we were better, we got into making masks for friends and family and somehow it’s already July. That said, I have much to report. I took disulfiram for 97 days. Some things got […]

Continue Reading →

Disulfiram update (with covid–19 in the house)

When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]

Continue Reading →

Disulfiram Slam

Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]

Continue Reading →

The problem is that Disulfiram works

I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]

Continue Reading →

Peaks and Troughs

Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]

Continue Reading →

A Question of Resistance

I’m on day 17 of Disulfiram. I took 5 doses of 62.5mg every third day. Last night, on the same schedule, I increased to my first dose of 125mg. So far, I have not felt much of anything out of the ordinary. I have the same loose bowels of the past 7 weeks. I have the same aches and pains with none flaring and none diminishing. The only thing that […]

Continue Reading →

Starting with Disulfiram

One week ago, I took my first dose of disulfiram. My doctor wants me to start slowly to see how bad the herxes are, so it’s been 62.5mg every third day, which will continue for one more week. If I can tolerate it, we’ll increase the frequency of the doses. To be honest, I’m chomping at the bit to take more, sooner. I had to remind myself that when I […]

Continue Reading →

Rethinking the Possibilities

Tomorrow, I’ll see a LLMD about taking disulfiram (antabuse) to see if it can finally wipe out my Lyme Disease infection. Maybe Babesia will get destroyed, too, if I can believe what I’ve read in the case study as well as message boards. So much of what I’m worried about is the “too good to be true” problem with almost every Lyme Disease treatment/cure I’ve read about or tried. For […]

Continue Reading →