Coiling for Lyme

Trying to cure one case of Lyme Disease

Disulfiram update (with covid–19 in the house)

When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]

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Disulfiram Slam

Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]

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The problem is that Disulfiram works

I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]

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Peaks and Troughs

Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]

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A Question of Resistance

I’m on day 17 of Disulfiram. I took 5 doses of 62.5mg every third day. Last night, on the same schedule, I increased to my first dose of 125mg. So far, I have not felt much of anything out of the ordinary. I have the same loose bowels of the past 7 weeks. I have the same aches and pains with none flaring and none diminishing. The only thing that […]

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Starting with Disulfiram

One week ago, I took my first dose of disulfiram. My doctor wants me to start slowly to see how bad the herxes are, so it’s been 62.5mg every third day, which will continue for one more week. If I can tolerate it, we’ll increase the frequency of the doses. To be honest, I’m chomping at the bit to take more, sooner. I had to remind myself that when I […]

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Rethinking the Possibilities

Tomorrow, I’ll see a LLMD about taking disulfiram (antabuse) to see if it can finally wipe out my Lyme Disease infection. Maybe Babesia will get destroyed, too, if I can believe what I’ve read in the case study as well as message boards. So much of what I’m worried about is the “too good to be true” problem with almost every Lyme Disease treatment/cure I’ve read about or tried. For […]

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A Historic Moment in Lyme Disease

A possible cure Over the past few weeks and months, a lot has been happening in what will be someday written about the history of Lyme Disease. The most exciting thing has been the publication of an article about a possible cure. I’m trying not to hold my breath, because so many supposed cures have turned out not to work. I know, I’ve tried some of them. Until I read […]

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Calibration

Last time, I wrote about starting serrapeptase, a biofilm dissolver and cyst-buster, to my coiling regimen. It was starting to get to me back then. Taking serrapeptase is like kicking a hornets’ nest. Apparently I learned this the first time I took it several years back (yes, I go back and read my own blog posts). This time around, I realized that it’s better to stop taking it and try […]

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