Coiling for Lyme

Trying to cure one case of Lyme Disease

COVID-19 Vaccine Plan

Let me start by saying I had no question in my mind that I would get vaccinated for COVID-19. I wasn’t sure when or which vaccine, but I have family I can only visit by plane (driving from coast to coast roundtrip once last summer was enough for a lifetime). So I knew that, unless specific contraindications for people with chronic Lyme Disease were published by the FDA or CDC, […]

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Slow Motion Replay

I have now taken 12 doses of disulfiram at 62.5 mg one time per week. Taking it at such a low dose and so far apart, has allowed me to watch what happens after each dose. I chose this method because I had good results doing something similar with the coil machine back in 2011. Going at a slow pace, with a lot of time in between, allows the herx […]

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Disulfiram and the Lyme Co-infections

Let me start with the update. Tonight I take my fifth dose of disulfiram, 62.5mg in the evening. Each subsequent dose after the first one has led to a smaller and smaller Lyme herx. At this point, I think I will increase the dose after the sixth dose (no need to knock myself out for Thanksgiving). The herxes are less apparent in the headaches, brain fog, and other neurological manifestations. […]

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Disulfiram Round 3

Two days ago, on October 19, I took 62.5mg of disulfiram. This is the third time I’m taking it, after stopping in the past due to side effects. Each of the past two times, I started with a different idea of where the disulfiram fits in my battle against Lyme Disease, and I have a new idea this time. Each time I stopped disulfiram, I could see the benefits, benefits […]

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Disulfiram trial 2

I had such good intentions to write about what was happening with disulfiram as I took it. But then COVID-19 happened, and a sick housemate, and I got what I think was a mild case, and when we were better, we got into making masks for friends and family and somehow it’s already July. That said, I have much to report. I took disulfiram for 97 days. Some things got […]

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Disulfiram update (with covid–19 in the house)

When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]

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Disulfiram Slam

Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]

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The problem is that Disulfiram works

I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]

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