Coiling for Lyme

Trying to cure one case of Lyme Disease

Familiar Territory

In June, I visited Jackson Heights, the place where I grew up and where I lived as an adult for seven years before moving to California. I know the streets and the stores. I have friends there and recognize neighbors whom I knew more casually. I know how to get around. Despite the ways in which I was in familiar territory, many things were different. The post office is in […]

Continue Reading →

Antibiotics Survival Guide

I’m back home after two weeks of visiting the East Coast. As gray as the weather is here, it is more bearable than 90 degrees Fahrenheit and 90% humidity. What made my time away both easier and harder was that I took antibiotics during the trip. I had stopped them and returned to coiling about a month earlier. During that month, the Lyme and other infections were slowly waking up. […]

Continue Reading →

More to Life than Lyme

During the year and a half that I was on antibiotics, I struggled to continue the projects I’d been doing. Backing up to the time after I stopped coiling, I began to slowly relapse and struggle with the projects I was doing. I was working on a novel and taking online writing classes. I was blogging. I was going for long walks and thinking about trying to increase the amount […]

Continue Reading →

Tethered

Over the past few months, I’ve been itchy to stop taking antibiotics. The itch was both literal and figurative. One can take antibiotics for only so long before the gut microbiome gets out of whack and itching in the diaper zone begins. (That is for another post.) Figuratively, the itch to stop had to do with all the other things that antibiotics don’t do so well. All the time I […]

Continue Reading →

Returning to the Coil Machine

From November 2016 to April 2018, I was on antibiotics. I learned a lot from the experience. Among other things, I found that the Babesia infection never went into remission. With active Babesia, I find it very difficult to use the computer. Please pardon my absence for the past 15 months. If you wrote to me or tried to post a comment, rest assured that I will get to you […]

Continue Reading →

Fragile

I’m in a mood today. I’m trying to close a real estate deal. I can’t tell if my agent is fighting as hard for me as I expect him to, and I’m trying not to get angry at myself for not realizing a mistake yesterday that has impacted the deal. Real estate transactions, just like so many other things in life are fragile. My personal plans for the future have […]

Continue Reading →

Overcoming Obstacles

I got a PICC this week. The process of working with an LLMD and transitioning back to antibiotics has been fraught with logistical obstacles and strong emotions. But before I get to those, I once again learned the lesson that I can get well enough to function for a short time (2-3 weeks) but that it takes a long time to recover after I’ve been active. A bit of travel […]

Continue Reading →

Transition Zone

It’s been over a month since I stopped the Alfons Ven remedies. I had a plan, once I stopped, to see a doctor and go on antibiotics for a while. I had a plan, you see, because I’m as well as I expect to get before my ovaries stop producing eggs. So I’d like to try to get pregnant, but I’d like to do so without infecting my husband or […]

Continue Reading →

Alfons Ven Lyme Package Redux

After six months using the Alfons Ven Lyme Package, I’ve learned a lot about how it worked on me and what its limits were. The first four months, I saw big improvements. The last two months, I seemed to get worse, as if the formula wasn’t strong enough to combat the infections. I am aware that some other people who have taken it decided it didn’t work at some point, […]

Continue Reading →