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It all comes out in the end

Thursday, May 5, 2016

I’m pretty tired today. This is the story of the third month on the Alfons Ven Lyme Package: Sleep at night. Take morning FLUOX. Nap during the day. Take evening CHIM. Repeat. I’m trying to get through the fatigue and postpone a nap that urgently needs to start to put together an update.

Alfons Ven Update

Since my last post, I’ve continued taking the Alfons Ven remedies. This included a five day break between packages of CHIM and the first two weeks of CHIM doses in the third package.

For the break between packages, I took 3 FLUOX per day. I also used a zeolite, ORËÁ, that helps to bind toxins and get them out. I took 10 drops per day in water, at night, away from the FLUOX. I continued my usual detox supplements: chanca piedra and milk thistle.

I went for an acupuncture session the second day of the break, in which the practitioner used Gua Sha, or scraping, to remove stagnation in my back. It was pretty intense (and my back had streaks of reddish purple for a few days). I was exhausted the rest of the day, but the following day, I started to get my energy back.

Towards the end of the second package, I had severe headaches for a few hours each day. This continued until the acupuncture treatment. After that, I had milder headaches, which came and went for a few days.

Otherwise, an amazing thing happened during the break: I started to feel normal again. I had a sense of possibility that this treatment would get me to the end of being tormented and limited by the tick-borne infections.

Then I started the third package (1 dose of CHIM each night, 2 doses of FLUOX each morning). It’s been more variable since then. I’ve had stomach problems, including pain, reflux, and lack of appetite. I’ve had intestinal problems, including more than 10 days of loose bowels. At the beginning of the package, I had some typical Lyme symptoms, including joint pain with popping noises, and rib pain. I had several days of insomnia, followed more recently by needing to nap for 2 hours every day. The night sweats tapered off during the first week, but returned the second week, increasing in magnitude and sometimes happening twice in one night. The last few days (tonight’s dose is #17) my kidneys are bothering me, and I have some inflammation in my bronchial tubes causing me to cough.

What has been really difficult is the lack of energy. This package seems to be doing something that just drains my energy and I can’t get it back, no matter how much I sleep. I’ve been lethargic. I’ve had brain fog some days. I feel unmotivated, yet unsettled by the things I’d be doing if I had energy. Sometimes I can push through and sometimes I can’t. The fatigue is disheartening. This is the part of the chronic infections that I have found most disabling.

On the bright side, I think that the fatigue and many of the other symptoms seem more like a reaction to bacterial die-off, rather than directly from the infections. I’ve had less pain, or at least in fewer body parts and for shorter duration, than I’ve had since I first got sick. I’ve had no strange neurological sensations for the past few weeks: no tingling, no numbness, no twitching, no nerve pain.

I feel like the remedies are working, though the treatment is slow going and not without the usual effects of attacking Lyme, Bartonella, Babesia, and the viral infections I picked up earlier in my life, like HHV-6 and Epstein Barr virus. I don’t feel well, but I’m not getting worse.

On the positive side, I’ve had a few good half-days. (That’s when I’m okay in the morning and don’t crash until around 3pm.) One of those day, I went out with friends and visited the wildlife in a boat on Elkhorn Slough. I posted some photos here.

Two Caspian Terns napping in a place with few daytime predators.

Two Caspian Terns napping in a place with few daytime predators.

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