Coiling for Lyme

Herx reactions

  • Disulfiram until I needed to stop again

    When I last wrote, I was about to start a higher (and yet still minuscule) dose of disulfiram. After 12 weeks at 62.5mg once per week, I increased to 125mg once per week on January 11. I stayed at that… Continue reading

    Disulfiram until I needed to stop again

  • Disulfiram update (with covid–19 in the house)

    When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to… Continue reading

  • The problem is that Disulfiram works

    I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard.… Continue reading

  • Peaks and Troughs

    Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After… Continue reading

  • Starting with Disulfiram

    One week ago, I took my first dose of disulfiram. My doctor wants me to start slowly to see how bad the herxes are, so it’s been 62.5mg every third day, which will continue for one more week. If I… Continue reading

  • Location, Location, Location

    Over the past two weeks, I’ve been taking serrapeptase to break up biofilms of the various chronic infections and to break open the Lyme cysts. Predictably, this has shaken things up. I’m more symptomatic, though the symptoms keep shifting. The… Continue reading

    Location, Location, Location

  • Avoidance

    Something happens when you have a chronic illness. The illness itself wears you down. With a relapsing illness, like the tick-borne infections I carry, the relapses wear you down even more. I’ve been struggling with being worn out for months… Continue reading

  • Back on Track

    These past few months have been all about returning to what I know works best for my body. These past few weeks have been about discerning which infections need treatment and how to fit that into each day. I’m coiling… Continue reading

  • Antibiotics Survival Guide

    I’m back home after two weeks of visiting the East Coast. As gray as the weather is here, it is more bearable than 90 degrees Fahrenheit and 90% humidity. What made my time away both easier and harder was that… Continue reading

  • More to Life than Lyme

    During the year and a half that I was on antibiotics, I struggled to continue the projects I’d been doing. Backing up to the time after I stopped coiling, I began to slowly relapse and struggle with the projects I… Continue reading

    More to Life than Lyme