When I last wrote, I was about to start a higher (and yet still minuscule) dose of disulfiram. After 12 weeks at 62.5mg once per week, I increased to 125mg once per week on January 11. I stayed at that dose until my last 1/2 pill on March 22. Here’s what happened and what I learned. Lyme Flares and Herxes The first two doses of 125mg of disulfiram gave me […]
When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]
I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]
Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]
One week ago, I took my first dose of disulfiram. My doctor wants me to start slowly to see how bad the herxes are, so it’s been 62.5mg every third day, which will continue for one more week. If I can tolerate it, we’ll increase the frequency of the doses. To be honest, I’m chomping at the bit to take more, sooner. I had to remind myself that when I […]
Over the past two weeks, I’ve been taking serrapeptase to break up biofilms of the various chronic infections and to break open the Lyme cysts. Predictably, this has shaken things up. I’m more symptomatic, though the symptoms keep shifting. The early reaction to the serrapeptase gave me clues about where the biofilms are, specifically the places that hurt right away. This, in turn, has helped me decide where to coil. […]
Something happens when you have a chronic illness. The illness itself wears you down. With a relapsing illness, like the tick-borne infections I carry, the relapses wear you down even more. I’ve been struggling with being worn out for months and months. What I’m looking for is the inner strength I’ve previously called upon to fight back until I achieve another remission. For those of you who have been following […]
These past few months have been all about returning to what I know works best for my body. These past few weeks have been about discerning which infections need treatment and how to fit that into each day. I’m coiling daily. I’m off all the herbs that I used to suppress the infections while I had visitors and couldn’t coil. Little by little I’m regaining my strength even as I […]
I’m back home after two weeks of visiting the East Coast. As gray as the weather is here, it is more bearable than 90 degrees Fahrenheit and 90% humidity. What made my time away both easier and harder was that I took antibiotics during the trip. I had stopped them and returned to coiling about a month earlier. During that month, the Lyme and other infections were slowly waking up. […]
During the year and a half that I was on antibiotics, I struggled to continue the projects I’d been doing. Backing up to the time after I stopped coiling, I began to slowly relapse and struggle with the projects I was doing. I was working on a novel and taking online writing classes. I was blogging. I was going for long walks and thinking about trying to increase the amount […]
Coiling for Lyme 