When I last wrote, I was about to start a higher (and yet still minuscule) dose of disulfiram. After 12 weeks at 62.5mg once per week, I increased to 125mg once per week on January 11. I stayed at that dose until my last 1/2 pill on March 22. Here’s what happened and what I learned. Lyme Flares and Herxes The first two doses of 125mg of disulfiram gave me […]
I have now taken 12 doses of disulfiram at 62.5 mg one time per week. Taking it at such a low dose and so far apart, has allowed me to watch what happens after each dose. I chose this method because I had good results doing something similar with the coil machine back in 2011. Going at a slow pace, with a lot of time in between, allows the herx […]
Let me start with the update. Tonight I take my fifth dose of disulfiram, 62.5mg in the evening. Each subsequent dose after the first one has led to a smaller and smaller Lyme herx. At this point, I think I will increase the dose after the sixth dose (no need to knock myself out for Thanksgiving). The herxes are less apparent in the headaches, brain fog, and other neurological manifestations. […]
Two days ago, on October 19, I took 62.5mg of disulfiram. This is the third time I’m taking it, after stopping in the past due to side effects. Each of the past two times, I started with a different idea of where the disulfiram fits in my battle against Lyme Disease, and I have a new idea this time. Each time I stopped disulfiram, I could see the benefits, benefits […]
When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]
For the past few months, since I stopped taking disulfiram due to side effects, I’ve been using the coil machine to try to stem the resurgence of Lyme disease and Babesia that have been slowly waking up. Things got worse at the end of January when I have my usual seasonal Lyme disease flare. Since then, I haven’t been able to get Lyme or Babesia under control. I had planned […]
Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]
Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]
Last time, I wrote about starting serrapeptase, a biofilm dissolver and cyst-buster, to my coiling regimen. It was starting to get to me back then. Taking serrapeptase is like kicking a hornets’ nest. Apparently I learned this the first time I took it several years back (yes, I go back and read my own blog posts). This time around, I realized that it’s better to stop taking it and try […]
Something happens when you have a chronic illness. The illness itself wears you down. With a relapsing illness, like the tick-borne infections I carry, the relapses wear you down even more. I’ve been struggling with being worn out for months and months. What I’m looking for is the inner strength I’ve previously called upon to fight back until I achieve another remission. For those of you who have been following […]
Coiling for Lyme 