Coiling for Lyme

bartonella

  • 2015: The Year of Bartonella

    I’ve recently returned from a Christmas trip to visit my sister’s family. As usual, the visits are markers of how much I’ve healed. This time, I carried my almost 40 lb. nephew up and down the stairs. I remember when… Continue reading

  • In Praise of Thoroughness

    Kidneys As I reported last time, it took four years of coiling to discover my right kidney. You may laugh. It was there all along. I never, ever thought about it as a place to coil. My kidneys are where… Continue reading

  • After a Quiet Month

    I’ve spent a lot of the past five weeks in bed or, more precisely, lying down in various places around the house. I was too sick with bronchitis to coil for the tick-borne infections, which meant I had a lot… Continue reading

    After a Quiet Month

  • The Lure of Antibiotics

    It’s been two weeks since I returned from vacation. I’ve been having a hard time since I left Mongolia. That’s right. Mongolia. It was a fabulous trip. We stayed in Ulaanbaatar for a few days, then took an overland journey… Continue reading

    The Lure of Antibiotics

  • The Length of a Day

    As I started coiling full body scans for two infections a day, totaling 3 hours on the coil machine, I started to think about how long a day is. Some days seem very long, like the day when daylight savings… Continue reading

  • Cycles and Progress

    I spent two weeks in Jackson Heights, NY, where I grew up and where I lived for the first five years after Lyme Disease caused me to become disabled. It was great to see my parents and friends. I only… Continue reading

  • A Month in my Head

    I’ve been talking to myself a lot the past month. It’s been a physically challenging, emotional roller coaster of a month. The vaccine I took at the end of March continued to wreak havoc on my immune system. The Lyme… Continue reading

  • Climbing out again

    Every now and then, I look at what I’m doing and I ask if I’m really getting better. This spring has been so hard that I often wonder if I’ve cursed myself by taking vaccines or even going at the… Continue reading

  • Kidney Conundrum

    The truth is that I’ve been feeling worse lately. It’s a hard truth. For most of the past 6 years, I’ve been getting better, in fits and starts. I haven’t regressed significantly at any point in time since I stopped… Continue reading

  • Exercising Restraint

    I’ve been thinking about exercise these past few weeks. I want to go running or do yoga, but I find myself exhausted every day. I’m sure it is from waking up the Lyme infection, but it has me reflecting on… Continue reading