Coiling for Lyme

Trying to cure one case of Lyme Disease

Tag Archive for ‘lyme’

Disulfiram and the Lyme Co-infections

Let me start with the update. Tonight I take my fifth dose of disulfiram, 62.5mg in the evening. Each subsequent dose after the first one has led to a smaller and smaller Lyme herx. At this point, I think I will increase the dose after the sixth dose (no need to knock myself out for Thanksgiving). The herxes are less apparent in the headaches, brain fog, and other neurological manifestations. […]

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Disulfiram Round 3

Two days ago, on October 19, I took 62.5mg of disulfiram. This is the third time I’m taking it, after stopping in the past due to side effects. Each of the past two times, I started with a different idea of where the disulfiram fits in my battle against Lyme Disease, and I have a new idea this time. Each time I stopped disulfiram, I could see the benefits, benefits […]

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Disulfiram trial 2

I had such good intentions to write about what was happening with disulfiram as I took it. But then COVID-19 happened, and a sick housemate, and I got what I think was a mild case, and when we were better, we got into making masks for friends and family and somehow it’s already July. That said, I have much to report. I took disulfiram for 97 days. Some things got […]

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Disulfiram update (with covid–19 in the house)

When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]

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Disulfiram Slam

Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]

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The problem is that Disulfiram works

I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]

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Peaks and Troughs

Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]

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Location, Location, Location

Over the past two weeks, I’ve been taking serrapeptase to break up biofilms of the various chronic infections and to break open the Lyme cysts. Predictably, this has shaken things up. I’m more symptomatic, though the symptoms keep shifting. The early reaction to the serrapeptase gave me clues about where the biofilms are, specifically the places that hurt right away. This, in turn, has helped me decide where to coil. […]

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Avoidance

Something happens when you have a chronic illness. The illness itself wears you down. With a relapsing illness, like the tick-borne infections I carry, the relapses wear you down even more. I’ve been struggling with being worn out for months and months. What I’m looking for is the inner strength I’ve previously called upon to fight back until I achieve another remission. For those of you who have been following […]

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