When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]
For the past few months, since I stopped taking disulfiram due to side effects, I’ve been using the coil machine to try to stem the resurgence of Lyme disease and Babesia that have been slowly waking up. Things got worse at the end of January when I have my usual seasonal Lyme disease flare. Since then, I haven’t been able to get Lyme or Babesia under control. I had planned […]
Last autumn, I decided to try to disulfiram for Lyme disease. I read as much as I could from other people using it. I consulted with a Lyme-literate physician. I kept him in the loop as I increased slowly, maybe not so slowly. After a while, he told me just let him know if I needed help. This is my story. Before I get into the nitty-gritty, I’m going to […]
I’ve been in bed for most of the last ten days because Disulfiram works. It started when I increased my dose from 250mg nightly to 312.5mg nightly. I had a good day and then the herx hit me pretty hard. It was the usual stuff, severe headache lasting 3 days, urgent loose bowel movements, fatigue, low appetite, problems regulating body temperature. It is what I expected. After the three day […]
Part 1 I’ve now been taking Disulfiram for a month. I started with a low dose, 62.5mg every three days. After two weeks, I moved up to 125mg every three days, but it felt like too long between doses. After checking in with my doctor, we made it every other day. After five doses, once again, I felt like it was too long between doses, so we moved up to […]
Over the past two weeks, I’ve been taking serrapeptase to break up biofilms of the various chronic infections and to break open the Lyme cysts. Predictably, this has shaken things up. I’m more symptomatic, though the symptoms keep shifting. The early reaction to the serrapeptase gave me clues about where the biofilms are, specifically the places that hurt right away. This, in turn, has helped me decide where to coil. […]
Something happens when you have a chronic illness. The illness itself wears you down. With a relapsing illness, like the tick-borne infections I carry, the relapses wear you down even more. I’ve been struggling with being worn out for months and months. What I’m looking for is the inner strength I’ve previously called upon to fight back until I achieve another remission. For those of you who have been following […]
These past few months have been all about returning to what I know works best for my body. These past few weeks have been about discerning which infections need treatment and how to fit that into each day. I’m coiling daily. I’m off all the herbs that I used to suppress the infections while I had visitors and couldn’t coil. Little by little I’m regaining my strength even as I […]
I’m back home after two weeks of visiting the East Coast. As gray as the weather is here, it is more bearable than 90 degrees Fahrenheit and 90% humidity. What made my time away both easier and harder was that I took antibiotics during the trip. I had stopped them and returned to coiling about a month earlier. During that month, the Lyme and other infections were slowly waking up. […]
During the year and a half that I was on antibiotics, I struggled to continue the projects I’d been doing. Backing up to the time after I stopped coiling, I began to slowly relapse and struggle with the projects I was doing. I was working on a novel and taking online writing classes. I was blogging. I was going for long walks and thinking about trying to increase the amount […]
