Coiling for Lyme

Rose

  • Cheating

    This summer I feel like I’m cheating. I’ve taken several coiling breaks since May. I’m about to take another one for three weeks while I go on my vacation (as opposed to caring for family members). I’m finally going to… Continue reading

  • The Length of a Day

    As I started coiling full body scans for two infections a day, totaling 3 hours on the coil machine, I started to think about how long a day is. Some days seem very long, like the day when daylight savings… Continue reading

  • Cycles and Progress

    I spent two weeks in Jackson Heights, NY, where I grew up and where I lived for the first five years after Lyme Disease caused me to become disabled. It was great to see my parents and friends. I only… Continue reading

  • A Month in my Head

    I’ve been talking to myself a lot the past month. It’s been a physically challenging, emotional roller coaster of a month. The vaccine I took at the end of March continued to wreak havoc on my immune system. The Lyme… Continue reading

  • Climbing out again

    Every now and then, I look at what I’m doing and I ask if I’m really getting better. This spring has been so hard that I often wonder if I’ve cursed myself by taking vaccines or even going at the… Continue reading

  • Containment Plan

    Over the past several weeks, since I took my last vaccine, I’ve been feeling worse. Initially, I thought it was purely a Lyme flare in response to the changes in my immune system brought about by the vaccine. Over the… Continue reading

  • Kidney Conundrum

    The truth is that I’ve been feeling worse lately. It’s a hard truth. For most of the past 6 years, I’ve been getting better, in fits and starts. I haven’t regressed significantly at any point in time since I stopped… Continue reading

  • Exercising Restraint

    I’ve been thinking about exercise these past few weeks. I want to go running or do yoga, but I find myself exhausted every day. I’m sure it is from waking up the Lyme infection, but it has me reflecting on… Continue reading

  • Bartonella Progress Notes

    Since I’ve returned from visiting my sister’s family during the middle of March, I’ve been focused on getting rid of Bartonella. I’ve been vacillating between feeling like I’ll never get to the end of coiling and realizing that I might… Continue reading

  • Thought for Food

    This past week, I’ve been trying to figure out what my dietary needs are and how to fulfill them. I haven’t been doing a great job with eating, but I’m getting there. For now, I’m working out what I think… Continue reading