Coiling for Lyme

using the coil machine

  • U2 or Crying in Public

    Two nights ago, I went to the U2 concert at the Meadowlands Stadium. There was so much that was great about the experience. I enjoyed hanging out with one of my friends from high school. He was so chill about… Continue reading

  • Ruminating on deferred dreams

    I spent the day today with other artists who are looking at the role capitalist oppression plays in our relationship to our artwork. Some are artists who get income from their work. Some, like me, are not. Still I take… Continue reading

  • Fun and laughter

    I am one of the minions that trekked out to see Harry Potter on the opening day. It is a ritual I enjoy with my parents as each new movie has come out since 2008. We go to a matinee… Continue reading

  • Lyme Herx Sequence

    Since I’ve been coiling for a while now, I’ve been able to discern what my Lyme Herx progression looks like. Headaches (with lots of eye pain and light sensitivity the first day or two) Insomnia (lasts 1-4 nights starts with… Continue reading

  • Aging

    I went to visit two of my mother’s sisters today. Aunt R lives nearby. She’s 95 years old. In the past week or two, she’s started using a wheel chair because of back pain. She sleeps a lot. She has… Continue reading

  • Watermelon

    It’s summertime. Watermelon is in season. It’s juicy and delicious, especially when it’s just out of the refrigerator. So I cheated last night. Once I had the first piece, I figured I would have an allergic reaction later, so I… Continue reading

  • Babesiosis in the NY Times

    It’s official, Babesiosis is on the rise. Approximately 25% of people who live on Bloch Island (near Martha’s Vineyard) test positive for it. In places where Lyme disease is endemic, experts believe that Babesiosis is becoming very common…places like coastal… Continue reading

  • Learning to move

    I’m still having a good time with my sister and nephew. My nephew gets cuter and cuddlier every day. Today we were hanging out on the floor (he on a brightly colored mat that has objects hanging over it for… Continue reading

  • Waning energy

    In my quest for a normal life this week, I ran into a Lyme related snag today. I ran out of energy. I know this happens every 4-6 days. And, honestly, I was impressed with myself for keeping up as… Continue reading

  • Getting settled

    It’s so nice to be with my sister and my nephew. I love them both very much. I’ve noticed that I’ve gotten quieter over the years. I prefer to look and listen and learn before asking questions. My nephew is… Continue reading