Yesterday was a symptomatically bad day. I was super tired. The kind of tired that makes me want to lie down every time I sit up. My bones hurt. My muscles hurt. My digestive tract was irritated, from tummy to colon…I went to the bathroom every hour or two. I got an intense headache that made my eyes hurt and was all over my forehead and the front of my scalp. I was miserable. I never even changed out of my pajamas.
Yet, for all the pain and such, it was nice to spend the day with my boyfriend. For the past 5 years, I’ve spent these miserable days accompanied by a book, the radio and Star Trek. I would lie around and wait for the day to be over. I’d be in too much pain (headache) to deal with the phone. It would make my mother upset when she came to visit me, so she would only stay a short while.
So I had one of those days and it was nice to be with someone who was happy to indulge in the guilty pleasure of watching tv all day. Guilty pleasure, maybe, but necessary to keep me lying still and letting my body do what it needs to do.
Usually I would wake up the next day (or after the last of a few bad days in a row) grumpy and lonely. Not this time. Granted, I wasn’t ready to get up until noon. The pain was reduced to the usual aches and pains but I was still tired. But I wasn’t grumpy. It was nice to hang out all day together and get up the next day still liking each other. It really got me out of my head.
I’ve read a lot about how isolating it is to deal with long term disabilities. I thought I had somehow escaped the worst of it because I managed to have a string of visitors and family members who stuck in there with me. I didn’t escape, though, as I can tell now, because it is a huge difference to not be alone for 20 hours a day like I used to be on a regular basis.
Yesterday and today, I coiled for Bartonella: top of head 1 minute, back of head 2 minutes, upper spine 2 minutes, middle spine 1 minute, lower spine 1 minute, chest 2 minutes, and abdomen 5 minutes.
First and foremost, tons of rest. Not too much food. Lemon water. Lots of water.
Today there was also skin brushing and kombucha.
After I blogged on Friday, I took a nap. When I woke up I was in the kind of pain that makes it impossible to move. I lay in bed for another 30 minutes waiting for the pain to die down enough to get up for dinner. I forced myself to go to the movies, hoping that moving around would get my mind off the pain. All I think I did was make things worse for the next day.
Yesterday is above.
Today is better. I’m still tired but I’ve been able to do some light activity this afternoon: a car trip to the grocery store for a few items and dinner with friends. At Easter dinner, I ate something I’m allergic to. So my eyes are itchy and I have a headache coming on. I’m still pretty tired. After this it’s time to lie down and rest until bedtime.