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Waking Up Again

Thursday, February 28, 2013

In my last post, I wrote about the 5 days of unrelenting fatigue. It was really getting to me. Each day, as I slogged through the hours, trying to convince myself to do something, I was getting depressed and reclusive. I was so tired and unhappy.

Then I woke up. It’s funny that it happens that way. I woke up one morning earlier this week and I had energy again. My mood lifted. I was still a bit slow all day, but not exhausted to the core. So I got back to doing the things that needed to be done (tax prep) and the things I enjoy doing (knitting, cooking, writing birthday cards).

Today is day 3 of energy. I’m remembering my previous spring seasons with Lyme flares and coiling and realizing that this experience is now familiar. I hope this will help me take the next bout of fatigue in stride.

Bartonella Update

It seems that as I have begun coiling more in earnest, the symptom profile is changing. My abdomen still swells up a few times a day, but it isn’t swollen to full capacity all day every day anymore. (It’s a little swollen all the time, but not uncomfortably so.)

I have tingling, burning, and nerve pain more frequently, but the episodes are getting shorter in duration. Many are only a few minutes long. A few last up to a half hour. The other nerve complication is lack of coordination. It’s messing up my typing, making me drop things when I cook, and causing other sorts of clumsy actions.

The ear pain has decreased in intensity. The floaters in my vision are pretty constant. I’m getting more headaches, but they aren’t nearly as bad as they were in the autumn. I’m still having light night sweats every other night. But I can sleep and that makes a huge difference!

Immediately after I coil, I get antsy. In fact, I sat down to write this as soon as I finished my morning coiling session and postponed taking a shower. I feel the urge to be doing something productive. Why waste it?

I get the impression that as I coil three times a day, I’m making a big dent in the Bartonella infection. The herxes aren’t getting worse and worse. They seem to have plateaued. I hope this observation bears out over the next few months.

February Coiling Activities

I’ve been coiling intensively for Bartonella for about a month now. It seems like a good time to put the record together a record of how I got to where I am and what I’m doing at this point.

  • Feb 1: Bartonella – 1 whole-body scan  (scan details)
  • Feb 2: Bartonella – 1 whole-body scan in the morning, 10 minutes on spleen in the evening
  • Feb 3: Bartonella – 1 whole-body scan in the morning, 10 minutes on liver in the evening
  • Feb 4: Bartonella – 1 whole-body scan in the morning, 10 minutes on chest at midday, 10 minutes on spleen in the evening; Lyme – 1 whole-body scan (scan details)
  • Feb 5: Bartonella – 2 whole-body scans, morning and night, 10 minutes on spleen at midday (revised scan details)
  • Feb 6: Bartonella – 2 whole-body scans, morning and night, 10 minutes on spleen at midday
  • Feb 7: Bartonella – 2 whole-body scans, morning and night, 10 minutes on spleen at midday
  • Feb 8: Bartonella – 1 whole-body scan in the morning, 10 minutes on spleen at midday, 10 minutes on liver at night; Lyme – lower half of body scan
  • Feb 9: Bartonella – 2 whole-body scans, morning and night
  • Feb 10: Bartonella – 2 whole-body scans, morning and night; Lyme – upper half of body scan
  • Feb 11: no coiling
  • Feb 12: Bartonella – 1 whole-body scan in the morning, partial body scan plus liver at midday
  • Feb 13: Bartonella – 10 minutes on liver at night
  • Feb 14: Bartonella – 2 whole-body scans, morning and night, 10 minutes on spleen at midday; Lyme – 1 whole-body scan
  • Feb 15: Bartonella – 2 whole-body scans, morning and night
  • Feb 16: Bartonella – 2 whole-body scans, morning and night, 10 minutes on spleen at midday
  • Feb 17: Bartonella – 2 whole-body scans, morning and night
  • Feb 18: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 19: Bartonella – 2 whole-body scans, morning and night; Lyme – 1 whole-body scan
  • Feb 20: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 21: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 22: Bartonella – 2 whole-body scans, morning and midday, 10 minutes on liver at night
  • Feb 23: Bartonella – 2 whole-body scans, morning and night
  • Feb 24: Bartonella – 2 whole-body scans, morning and night; Lyme – 1 whole-body scan; Babesia – 10 minutes on chest (to see if the infection is active)
  • Feb 25: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 26: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 27: Bartonella – 3 whole-body scans, morning, midday and night
  • Feb 28: Bartonella – 2 whole-body scans, morning and night; Lyme – 1 whole-body scan

I put the whole coiling log up because it illustrates how I slowly built up to being able to coil for Bartonella three times a day, almost every day. I didn’t start out that way. In fact, it took a while for me to be able to do one whole-body scan every day. It also shows the times I skipped because of external events (e.g., a bad start to my menstrual cycle on Feb 11 or the trip to the mountains on Feb 12 &13) and how I modified the routine to get in as much as I could.

Coiling takes a lot of time on a daily basis and a lot of persistence. I have to do it when I feel too tired to be awake. I have to prioritize it over and over, when there are other fun things and distractions. Having said that, I’m planning on taking a week off to go on vacation to the deserts of Southern California. During that time, I’ll let the Bartonella and Lyme toxins work their way out of my system. When I get back, I’ll be focused on beating Bartonella and chipping away at Lyme.

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