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The Long Run

Sunday, May 1, 2011

Lyme disease requires a tremendous amount of patience. When I first got sick, it was my crisis.  For a while, I was the recipient of a lot of attention. Then life happens to everyone else while I’m stuck on the sidelines. There are celebrations and crises for other people. And I did my best to be part of them for the people I care most about.

Meanwhile, I had to wait for a diagnosis. Wait for the antibiotics to work. Wait for the insurance company to approve the next treatment. Wait until I felt better enough to do my own research on what else I could do to fight Lyme. Wait until I could spend a few hours out of bed to spend time with people. Wait, wait, wait, while trying to heal.

Coiling has its benefits in that I have some control of what’s going on and I feel like I’m doing something. Still, I have to wait for the Herx to arrive (while trying to do everything I can on the days when I’m well). Then I have to wait for the Herx to clear out. Wait for the headache to stop. Wait for the fatigue to go away. Wait for the pain in my spine and joints to resolve. Wait until I feel well enough to start the cycle again.

Meanwhile, the dishes are waiting to be done, the phone calls to be returned, the emails to get a response and the laundry to be folded. My life is waiting to move out of first gear, where it’s been inching along for four years.

So I’m happy to report I still have a sense of humor. I still have family and friends who stuck around. I still have dreams and goals. I still have hope. And I still have to wait for my body to heal.

Coiling

Today is a co-infection day. No increases with this headache, just keeping steady on the course. Coiling for Babesia is still giving me a lump in my throat.

  • Bartonella, abdomen, 5 minutes
  • Babesia, chest, 3 minutes; liver, 2 minutes
  • Candida, abdomen, 10 minutes

Detox

I was at a retreat today with a lot of people who are working to keep their dreams big and their lives moving forward (just like me). So I couldn’t manage everything I usually do. I did do some emotional clean-up, with lots of laughter and enough big yawns to make my eyes tear.

  • homeopathic support
  • kombucha
  • skin brushing
  • BioMat
  • castor oil pack on liver

Body

I had no night sweat last night. (Odd.) Going to bed early (10:30 pm) was great. It took a while to fall asleep, but I slept well. My pain level was only moderate this morning, centered around my calves and feet.

During the day, I had a mild headache, which has gotten much worse tonight. I had some cardiac symptoms at around 10am, but since I wasn’t home, I didn’t have magnesium with me. Instead, I sat on a couch with my legs up to give my heart a break. The bones on the left side of my ribcage hurt all afternoon as did my lower back.

This evening, besides the headache, I have light sensitivity and an earache. I have continued pain in my lower back and my pelvic girdle. I had two painful gas attacks, one at 6:30pm the other at 10pm. I’m not sure what they’re from since I don’t believe I ate anything that bothers me.

And I am very tired.

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