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Learning to be in charge

Wednesday, July 13, 2011

One of the key things that I like about the coil machine is that it has forced me to take myself seriously as the person in charge of my healing program. No doctor can advise a person on how to use a device that isn’t FDA approved. I’ve been in charge of figuring out how to use it, and along the way, incorporating what I’ve learned to generate my comprehensive healing program. Kind of like the “Coiling Plus” program.

I went to see Dr. Morrison today. He knows a lot about tick-borne illnesses. He guided me through many rounds of antibiotics as well as a variety of integrative therapies. Under his care, I went from not being able to walk and having no diagnosis to getting to where I am now.

In the beginning, I had to lean on him a lot. (And I had to learn to trust him after my relationship with the medical community was damaged by a year of painful, inconclusive tests and many professionals giving up on treating me with anything other than painkillers or antidepressants.) I needed time to heal enough to have attention for learning about my illnesses and all the treatment options. Over time, I’ve wanted to try things, not all in concert with his recommendations. He has whole-heartedly approached our doctor-patient relationship as a partnership. On several occasions, he was open to letting me risk making mistakes in order to go with my best thinking. He has helped me along the way, working with other doctors and now learning about the coil machine as I experiment with it.

At this point, I’m able to go in with my treatment plan and ask for feedback, support and answers to specific questions. It is completely different from where we started out. The amazing thing is that he has been flexible enough not to respond to me learning to take charge of my health as an affront to his authority as a doctor. In so many ways, I’ve lucked out.

My current plan, as we worked it out, is to finish up the homeopathic remedies I’m taking now, then to stop them for a while. Then, at the end of July, I’m going to see a homeopath to get a constitutional remedy (see Thoughts on Homeopathy).

The key thing Dr. Morrison wants me to change is to consume more natural antioxidants (as in the kind that occur in food). Bummer. I’m allergic to berries (red and purple foods) and chocolate. I don’t consume caffeine because it makes my heart race, which kind of takes green tea off the table. I’ll start brewing green tea kombucha this week (I swear!) as the nearest alternative because supposedly the bacteria in kombucha eat the caffeine in the tea. Once that gets under way, I should be able to have 2 cups a day (which is too expensive for me to do when I’m buying it by the bottle). I’m also going to look for some green tea based antioxidant supplements and see if I find one that works for me.

The good news from the visit is that I can add a few foods to my diet: cantaloupe, honeydew, white peaches and papaya (each on a test basis to see if I react). I’m also on the lookout for white berries to see if I don’t react to them. (Suggestions from anyone who reads this are highly desired.)

Coiling

I was out all day. I don’t have enough time to do all the coiling treatments I’d like to before bed because the coil doesn’t have enough time to cool in between.

  • Bartonella, abodmen, 5 minutes
  • Babesia, chest, 10 minutes
  • Candida, abdomen, 10 minutes; chest, 2 minutes

Detox

  • homeopathic support
  • kombucha
  • skin brushing
  • nap
  • sunshine (walking outside)

Body

I had terrible insomnia last night. I was in bed from 11:30pm until after 2am trying to get comfortable and cursing the Lyme Herx. Then I was awake again before 7:30am. Aargh!

I know the insomnia will only last a few days, but it still sucks when it happens.

Part of why I couldn’t sleep was that everything hurts. My joints, my muscles, my tendons, my skin. My arms and legs and hands and feet and back and neck and head. My eyes and ears. Plus, I’m starting to have tingling sensations on my arms and ankles. It feels like an ant is crawling around, but there’s nothing there. (Believe me, I checked, over and over.) Last night was pretty bad.

The worst of it is that when I don’t sleep enough, everything hurts the next day. So I had all the same pains as last night, and a headache to boot. I wanted to be out and about when I went to the doctor, so I just operated over the pain.

The tingling also continued today. I’m getting the feeling that the cyst-forming result of the antibiotics I’ve taken is starting to expire. I haven’t dealt with tingling in my limbs since I started Rocephin last September. This might be a preview of what I’ll be dealing with in the fall.

Other symptoms today: car sickness, nausea (not in the car), floaters in my vision, a feeling of restlessness, like I need to be doing something every minute. I’m also having some kidney/bladder issues: mild urinary hesitation and cloudy urine. I got super tired by 4pm and passed out on the couch for a while.

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