It was a funny kind of a weekend. I rested a lot. I spent a bunch of time on the phone lying in bed. I felt unproductive and a little tortured. Then when I had rested enough, I went out for a walk and did a few time-sensitive things on the computer. Then I rested some more. I rested enough to decide it was okay not to blog after doing […]
One of the issues that arises repeatedly is getting the right amount of sleep. In the early years of debilitating Lyme Disease, I slept a lot, 10-16 hours a day. It seemed like I couldn’t get enough. When that phase was over (after I started antibiotics), it’s been more varied. I’ve gone through periods when I can’t sleep well or for full 6 to 8 hour stretches. I end up […]
I saw the cardiologist today. The short version is that I’m still coming off florinef. I have two doses left at half strength this week. Then I’m done. I go through withdrawal and see him again two weeks from now to decide if my body has stabilized in a way that doesn’t require drug intervention. The more important thing that happened today is that my doctor reminded me that I […]
I spoke to one of my fellow Lyme-combattant-coilers last week. She sent me a different coiling schedule than the one I was using. (I mentioned this the day I spoke to her.) It’s an interesting idea that I’ve been processing for the past week or so while I try out the concept. The basic premise is that I’ll cover my whole body with the coil over the course of one […]
About once a year or so, I get a craniosacral therapy treatment. It always moves something for me, but I don’t really understand how it works. Apparently there is a lot of controversy about whether craniosacral therapy does anything at all. I can understand why because the treatments I’ve received are so subtle. The practitioner puts her hands at the base of my skull when I’m lying down on my […]
As I continue to experiment with new treatments, to modify my protocols for bacteriacide and detoxification and diet, I have to make tons of decisions. Today, I’m pondering two of them. First, should I stop florinef on Saturday? My doctor told me if I was okay after a week, I could stop or cut the pill into quarters. I’d rather just stop. The benefits are that I’d be finished with […]
Here’s the newest addition to my program: grapefruit seed extract (GSE). Since I’m now allergic to two anti-fungals, my doctor asked me to try liquid GSE and see what happens. I bought a small bottle at the Vitamin Shoppe today. I took a dose with dinner. Now, as I’m reading about it online, I find out that there is a controversy as to whether it has antimicrobial and antifungal properties. […]
Two currents were drifting in new directions today. Florinef & Fungus Update I woke up this morning to discover that I’m developing an allergy to ketoconozole. It was a special, prickly kind of itch. I’ve only felt it once before: the day before diflucan gave me a bright red itchy rash covering my arms, chest and neck, elbow to elbow. I didn’t know then what was causing it, so after […]
Over a decade ago, I stopped taking antidepressants. I don’t recommend them for anyone. They made me kind of numb to what was going on around me, meaning that I missed the subtle cues that life threw my way and left me trying to put my life back together after a traumatic event in semi-darkness. And even though they reduced the amount I cried (not by that much), the side […]
As I work through day 3 of coming off florinef, I’ve been reading a little bit about adrenal glands and adrenal insufficiency/fatigue. There are contradicting statements out there about avoiding salt (because most people with adrenal insufficiency have high blood pressure) and whether or not to take corticosteroids, which is what florinef is. One of things I remembered and read some more about is the Traditional Chinese Medicine approach to […]
Coiling for Lyme 