I went to see a rheumatologist this afternoon about my recent diagnosis of osteoporosis. I was pretty nervous, ready to do battle about whether I have Lyme Disease, given my previous experiences with rheumatologists. I looked up lots of information about premenopausal osteoporosis, so I could keep the conversation focused on the current problem and also because I like to learn enough in advance to understand what a doctor is […]
Now that I’m more mobile, as in I can walk a reasonable distance and still participate in the activity at the other end, I’m thinking about public transportation. Mostly, if I couldn’t walk somewhere during the past almost 5 years, my mother drove me. Lately, I’ve been able to drive myself around. But parking in NYC is no picnic. Back when I first got sick (but tried to convince myself […]
On Monday I had my first Reiki session. I’ve been thinking about it for quite a while, ever since I met up with my former roommate from graduate school a few years ago. She thought it would be a good way to replenish my depleted energy. Reiki is, at least conceptually, a way to channel universal energy into a human being for the purposes of healing. There is no western […]
Any time my primary focus is off my health, everything goes awry. Coiling takes a fair amount of time and scheduling, both the actual time on the machine and the time in between when the coil needs to cool. Detoxing takes focus, both to prepare all the pills and potions and to remember to space them out properly. The plan for this autumn’s Lyme Disease flare and extra coiling has […]
It was a funny kind of a weekend. I rested a lot. I spent a bunch of time on the phone lying in bed. I felt unproductive and a little tortured. Then when I had rested enough, I went out for a walk and did a few time-sensitive things on the computer. Then I rested some more. I rested enough to decide it was okay not to blog after doing […]
Some days I have no appetite. My cardiologist asked about this, probably in reference to coming off florinef. He firmly told me I need to eat. I already know. Most days, I have three meals and a snack or two. I force the meals if necessary. I eat the snacks if I’m even vaguely hungry. Today was one of the days when I failed. Between the florinef and the Lyme […]
I spoke to one of my fellow Lyme-combattant-coilers last week. She sent me a different coiling schedule than the one I was using. (I mentioned this the day I spoke to her.) It’s an interesting idea that I’ve been processing for the past week or so while I try out the concept. The basic premise is that I’ll cover my whole body with the coil over the course of one […]
Little by little, I’m getting my protocol for autumn in order. I can feel myself slowing down. My priorities are getting more focused on my body and on catching up with my backlog. Less social time, more time resting and taking care of myself. As I’ve looked at my detox protocol, I wanted to add in something else that absorbs toxins. My acupuncturist recommended diatomaceous earth and my doctor agreed […]
I’ve now coiled for Lyme three times since August 13, or about 2 weeks. My plan heading into fall is to coil every week. It’s already getting scary. I don’t know how to make sure I’m detoxing fast enough. I’m sure I’m not doing enough. It’s hard to keep everything straight in my head, and honestly, I’m still trying to figure out a plan. In the spring, my detox routine […]
For a few days in a row, I’ve pretended to be something other than disabled by Lyme disease. In a certain way, this is exactly what I was hoping to do with my summer. I was with people. Saturday, I went to a party. Sunday, I went to a stranger’s wedding so I could spend the day with one of my friends whom I love most in the world. Today […]
Coiling for Lyme 